two years REALLY

two years ago today grandpa left this earth was it really that long ago. His end was a hard one drs had given him six weeks about two years befor due to pancreatic cancer two years later many stents hosptialisations and tiems we thought he would pass he went. He had gotten an infection in the stent wich had gotten into his bowels wich had caused heart failiure. Grandpa was a veyr lovely charming man he loved mladys he was allways cheeky with everyone ever wondered where my cheeky side came form grandpa and grandma were together for nearly sixty years and grandma is still around at 85 ive allways loved my grandparents allwasy been very close to them mums parents would allwas do anything for me. grandpa would come up and see me in hospital even if he was in grandma would come up eveyr day to they did many things for me and grandma still does grandpa and grandma are the best and i am lucky i am old enough to know them both dads parents didnt live long enough for me to reemmber dads daddy died when i was about five r six i do have a few pics of him tho one wich i love is on where he is trying to get me to throw a foot ball to my brother and i guess i wasnt that into sport even then coz i was staring at the ball like wat u want me to do here dads mum went when i was eleven she was a great woman to she to had died of cancer i am lucky grandmas still around i love my fam so very much miss you grandpa poppy and nannie wish i could see you again and hug you again

back to roselands yay

Hello all. I am very happy now tht cpp has or is finaly returning back to normal. Last friday we came back to roselands house after six long months it is looking great. Today i am back to the mnormal place where i can do my programmes normally such as editing my blogs on here. Other things im still going good. Last thursday i had my tube change with local nasetic lincatane it was ok. There is a special whistle you can use to but they didnt want to use it on me as it can course kidney probs and as chargers do have odd kidneys we dotn want to do that. I do have one kidne larger than the other and used to have reflux in there. The tube change went great i felt everything a bit but it was ok. We went to xray to try get my mri there is a month waiting list how crazy is that.. Other things are doing good i cant beleive it is getting close to the end of the year again i relised a while ago ive blogged more this year than other years. I think i should keep this up, I have even done my chrismtas shopping well practicaly basicaly all those bracelets ive got on crys evas mummys site over the year is going as xmas gtifts to people only ones that need presents to be brought are my brother dad who i got male carers at cpp and the male mannager person at afford everyone else will be getting a special hand made bracelet that will have a special story attached weather its for charge syndrome or cancer or crohns each of crys bracelets are special and i love them. I also cant beleive alot of the shops have christmas stuff so early i even got my cards a few weeks ago and am organising the xmas card exchange so as allwasy this tiem of year lots happening i do beleive i have a few drs i should see befor the year ends dental ent again and maybe endo i missed the one i=six months ago i love this time of the year it is allready warming up tho and i dotn like it to ot but the flowers are out and gorgous and the smells and sites are great hope everything else stays good for now.

Help crystal masionis and family

some who read my blog would know of Crystal and eva masionis and soem will be aware that the fam has had a very hard time the past year with crys having cancer her eldest having crohns and of course eva being a charger jsut going to drs for check ups this all creates alot of bills specialy since crys has had cancer treatments again so one of her firends created a page for us all to donate http://www.helpcrystal.com/ it is a pay pal thing very easy jsut select the ammount on the side then click the paypal part and if you have an account sign in if not sign up and thee its done and also pass this around for her and for us all. if you anyone wants to read mroe about the family click on my link at the side that says eva or the picture that says eva nicole hugs

to my special mummys

i found this on another blog not a charge but a special needs one the mummy posted this this is for all my special mummys out there specialy crys and sandy and all other mums LOVE YA ALL

Dear mommy,

I have felt your tears, falling on my face.
Someone else might think they are tears of sadness, because of what I can't do.

I KNOW DIFFERENT.

I know those tears pour from your heart out of gratitude for me, because of what I CAN do : I can love everyone in the purest form possible. Unconditionally. I can be judged, but will never judge in return.
I know different because I feel, in your hugs and kisses, that I'm perfect just the way I am.

I have seen you hang your head down in shame, when we go out on adventures.
Someone else might think you are ashamed of having a child like me.

I KNOW DIFFERENT.

I know you are ashamed of the grown-ups who ignore me, yet talk happily to all the other children. The grown-ups who won't look you in the eye, but stare at me, when they think you don't see. I know different because I've seen the many, many more times you have raised your head up high, with pride, because I'm yours. : )

I have heard you whispering desperate prayers at night. Someone else might think you are asking God to make me a typical kid.

I KNOW DIFFERENT.

I know you are thanking Him that I got to be here, with you, for another day- exactly how I am. I know different because I have heard you ask me never to leave you. And I have heard you cheer for me, every single day of my life- you tell me I don't need to be typical to be amazing, I just need to be here.

I know you have a big job, taking care of me.
I know your body hurts, because I'm getting so big.
I know that more than anything, you want to hear me say your name.
And I know you worry that you aren't good enough, and that you will fail me.

BUT I KNOW DIFFERENT MOMMY.....
I know that even on your worst days, you will always be enough for me, and I will always love you more than you know

ok this update is for u lovely sandy and the rest of the kurby fam

well i am updating for you sandy as you dotn have facebook and there isnt any new updates on evas blog. So to all others who been thinking of Crys evas mummy shes out of hosp out after second treatment and is doing well she has her next test in two weeks keep the thoughts coming people

update on the sweet charger

the other day i asked for prayers for a sweet charge and fam i know through fb well jsut wanted to tell u all who dotn see fb everything went great and they r heading home i beleive positive thoughts and prayers can really work it doesnt matter what you do jsut do one or the other and it works other stuff im doing ok having fun looking at christmas in every shop lately LOL christmas has arived in alot of shops and its crazy

asking for prayers for a special charger

Hello all its occtober and i have a very special request form one of our charge fams please pray for the very special charger in my fb pic. His name is mathew hisd mummy dena is asking for prayers and sutff on fb as he is going in for soem testing in cincianati. As we all know with these chargers or some sometiems these tests and procedures can be fatal. We know that a charger means the ability to fight pray for his ability to fight and for the fam send positive thoughts and let us hope the drs can do what they need to do to help him will update if i hear or see anything on fb thanks