i am a young girl with charge syndrome charge is very complicated but it doestn stop me form being who i am i am a good friend to everyone everyone loves me
Friday, 26 September 2008
the 9th autralasion charge conf is coming up
well hello again i know im absent but the 9th australian charge conf is coming up in a week and im going will post more bout things when i get back but shoul be interesting ive been doing good its warming up here and im still swimming weekly with roselands its great i am going to try get a job round advocacy helping those who catn comunicate liek me and jsut being who i am i didnt need to go c the chest dr like the ent thought i mite it all truned out k we r all doing good grandpas still hanging in there amazing i know where i got my toughness form
Monday, 25 August 2008
updates
i finaly have my new char yay also last week i had dental appts this week is ent again been doing lots of fun stuff northcott and fam and stuff i am tired of the winter i want summer so i can swim
Thursday, 31 July 2008
Tuesday, 29 July 2008
my old blog
http://ellenschargeinfoandupdates.blogspot.com/
this is myu old blog only bout three posts on it but its me i started it and then i forgott the log in or didnt gorget and then made this one and this is my one but if u wanna see the old oen with only 3post take the link amy i saw kristy and dylan psot and steph and them can you send them this link pls or hang on theyd see it in ur blog anyway ill go psot them a comment but i love this oen
this is myu old blog only bout three posts on it but its me i started it and then i forgott the log in or didnt gorget and then made this one and this is my one but if u wanna see the old oen with only 3post take the link amy i saw kristy and dylan psot and steph and them can you send them this link pls or hang on theyd see it in ur blog anyway ill go psot them a comment but i love this oen
Friday, 11 July 2008
life
ive been thinking lately bout life and how we jstu no stuff and ive been reading jaydens caring bridge site and sendign all these good thougths to his fam and then i read how people wer being disrepectful to them it made me feel kinda sad how people can be ive known many people that have passed nto jsut charers peopel form hospital to many many from there and each time they would go i would go to the funeral and feel sad that not everyone was there for them i wish we lived in a better world but we dont oh well im doing ok tomoz im going to georgis 18th with sevie and then sunday im waking up in sevs new house yay and then donno wat in the arvo come hoem msn and all that also one of dads auntys died his mothers sister i was closest to her out all of her sisters this owonderful woman was a volanteer at the hospital when i was little and would come and chat to me every day i think i was her main person she sat with soemtiems shed take me with her when she went around the wards soemtiems she would just chat to the drs and nurses and people hes got two auntys left one lives round the corner well close and i havent seen her in ages i hope mary rests in peace and hope she looks after all the charge angels up there like she looked after me in hosptial
Wednesday, 25 June 2008
update on fam
thought i would tell some cool news my brother is engaged he got engaged in about april i think his gf is lovely lady we all like her very much and im happy shes apart of our fam she is in the navy and is away a bit but has been around alot lately and will be here on my bday yay grandpas doing well hes bout the same no worse or anything so this is good news for all of us we r all good and crazy and lookign fwd to a big spring wedding next oct i know who i wish could take the pics for them and you know who u are to can you save up LOL
appts updates
last monday i saw my endo lady im doing great she said i need nothing much done and is happy to start seeing me yearly after crhristmas she will see me again befor that then yearly the ent said i got bad glue ear and may need gromets he wants to c me in a month on saturday ill b 23 scary
Thursday, 12 June 2008
needing to go to ent
ive been doing ok but lately ive been having some off balance i have been swimming everweeks and not using earplugs and think i have some fluid build up also mon is the endo check up so lots going on i wish everyone to keep my grandpa in ur thougths hes on his way out and grandma is that difficult time when shes i am scared of this but wotn accept help pls give her strenths to say that she needs help specialy as hes falling constantly he has cancer and is 83 most parents with special needs like oru charge mummys often dotn like asking for help and my grandma is jsut the same love u all
Friday, 9 May 2008
jstu saying hi
havent updated in a bit so felt like saying hi its amazing how many charge people r now blogging theres a new little charger fam that has started bogging foudn them in the google alerts the little girl is so cute in her pics and they have the gene amazing wonder how many other charge bloggers r otu there hidden
Tuesday, 15 April 2008
vision appt
well i had my eye appt thing today havent seen them in four years everythign is much the same but then when i was comign hoem in the taxi well often in the charge group we often talk botu peoples reaction to oru disabilites well today wa a wierd one first he goes wats wrong with her ok i dotn mind that soemtimes can allways tell them bout charge and all that but no the way this person asked wa liek a bad thing then does the government look after me now thats getting a bit far for my liking fine educate bout charge i have charge i was born like this bla bla b ut does the government look ater me is that really anyones bussiness then how do you look after god im not that bad i can walk alk and am better off than most of my friends liek one of my roselands friends lives with jst hder mum and she does everything and not everyone is like her but its like people think we are and its how do u do it i mean hello mum and dad work and they get a pension thats how and they save as much as they can to get me things i need like a new chair its jstu wierd the way people r these days and also the taxi wouldtn get my chair into the boot i mean really worries about me and how we do it and doesnt help get the chair in and out how stupid is that oh well
Friday, 21 March 2008
happy easter
well easter has started have a very happy easter everyone hope you eat lots of chocs yummmmmmmmmmmmmm
Friday, 14 March 2008
new chair and other updates bout me
well im on track for a new chair should get it befor my bday last report from endo said scoliosis gettng wors so trying more excersise and make the chair witnh more back support all the other sutf is going well the tube stuff istn it still hurts to much to change so seeing dr on mon think they need put me otu in the bin lol
eva and cris is walking for march of dimes
every year babies and charge babies are born to early just like eva was and every year some go to soon so this year cris and eva are walking in honour of cedie who went to the angels to soon tho i never met little cedie i allways felt i know her and in honour of kate who went to soon to donate visit march of dimes and click cris and eva to help them get to their goal for loosing someone is loosing urself xxxxxxxxx
Wednesday, 6 February 2008
Thursday, 24 January 2008
google alerts r cool
and you know y coz u can help ossbile chargers when it comes thru lol i think ive found a new fam and id loved them to visit me so here i am
google alerts r cool
and you know y coz u can help ossbile chargers when it comes thru lol i think ive found a new fam and id loved them to visit me so here i am
Tuesday, 8 January 2008
ive been tagged thanks cristalxxx
from cris
1) i mite acutaly be working soon in a book shop or florist
2) i would love to be able to help people like me in the world
.3) my house was acutaly built in 1860 and the otehr day we saw a man whos dad lived here in the 1920s
.4) i want to go and visit all my little charge friends
.5) i want to go around all the beaches of aus
OK, now on to the tagging...reus mum les and amelie jacks mum
1) i mite acutaly be working soon in a book shop or florist
2) i would love to be able to help people like me in the world
.3) my house was acutaly built in 1860 and the otehr day we saw a man whos dad lived here in the 1920s
.4) i want to go and visit all my little charge friends
.5) i want to go around all the beaches of aus
OK, now on to the tagging...reus mum les and amelie jacks mum
Tuesday, 1 January 2008
happy new year
happy new year everyone hastn the last year flown by i spent christmas at grandmas we all ate and relaxed was great fun seeing the family all thether who i see but some i dont often i wed we all went to simon and yevette my cousins and we found all the fam up there at dinner at there house in leura and had left overs and thursdfay lunch was more elft overs as grandma and john came up for the day and brought me and mum bak saturday and friday didnt do much saturday went shopping ad mum and dad did a barbi out the back sunday we went to milton to mums c ousins house and all her friends came and we ate and talked last nite more of the same with a swim on mollymook beach yesterday and today came back last night sue was taking pics of alex sleeping in the new year was funny mums cousin and everyone r the best love my fam and them
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