its coming its coming

the charge conf and harrypottter land is just three months away. I am thinking of a theme a daily post theme for my blog in July so you can all keep up with how i am doing and everything any ideas on what to call it. everything else is doing well here just doing my normal things

buying the BAHA

Well we have decided that we like the baha so much that mum is going to buy me one. The audioligist rang on Friday and he wil order one and i can keep this one till he gets it in and then we will buy it. I cant wait I love the baha it is so much better though soemtimes it does produce an interesting sinphony of whistling.  Everything else is great. Met another charge fam yesterday one that i have comunicated with on facebook and they live very close by  well just over the harbour bridge We plan to see each other often they are lovely people. Also plans are coming along well for the orlando harry potter land and he charge conf i just cant beleive we are allready in April.  Not much else new here at the moment i do have a bonedensity i need to get done form last year and soem bloods for the endo and then see him soemtiem in May and i guess we will see ent at some point to tell him how the baha is going. hope everone is enjoying spring or autum where ever they are it is finalycooler here especialy at ight. Had a lovely swim yesterday and i dotn beleive ill be having many swims at the beach for a while.

Baha

On Friday i got the Baha. It is amazing it was such a quick and simple visit to the hearing center for the softband. It is amazing its jstu a little box on a band I can hear much better. I can hear peopel talking in traffic when i couldn't befor and i can also hear my own voice better. Sometiems i hear my self echoing a bit and it sounds funny and my hole head seems to vibrate but mostly its good The band does want to slide off though. I have it on a two week trial and then we may well be buying it in other news i am doing well. It is getting cooler here but still humid and sticky. All my charge firends are good to and it makes me very happy to read all the good things on the blogs and facebook.  I am still planning on orlando and am working on my speach or it and looking forward to meeting everyone.                                

getting a baha

on friday i am getting the baha softband it will be great to try other news everything is great

helloooooooooo

my ears all better now am also happy that my wonderful evas fam r home together again nm happening here jsut the usual stuff

ear infections r yucky

ear infections are yucky i have one.  other than that im doing ok. Pls keep evas family you know the sweet charger on my side bar the one ive talked bout befor her brother had the surgeyr friday and is very sick my ear is nothing compared to some of these things tha they r going through

hearing update

yep got moved to today YAY and saw someone who knows me well wich is good. Well we are ordering the baha on the soft band fr a trial should b here in the next few weeks in other things everything is doing well and no we didnt have floods

evas butterfly jewels

 crysstal evas mummy has been making bracelets like crazy in her time up at the hosp  each month will have a different thheme this month is CHARGE in honour of eva and me and all our other chargers pls click on the link each bracelet you buy she will donate the money to the foundation and eac one is named after a charger cyrs is a great woman and i love these bracelets

http://www.etsy.com/shop/EvasButterflyJewels

hearing appt and positive thoughts

jsut wanted to say my eharing appt has been moved to the seventh of feb apparently the audiologist has to c a baby thoguth she onlyu sees adults but yeah she has to see a deaf baby urgently so i got bumped the joys of drs and stuff send good thoughts to my lovely evas fam her brothers in hosp again yeah shes a charger like me her buttons on my side her fam r so great and they dotn need this riht now

hey

well cant beleive its 2011 last year was a good but fast year hope this years jstu as good for all my firends christmas was spent in the mountains first christmas in memory we havent had to get in our car and drive soemwhere everyone came to us was great i got a new camera book some clothes and other stuff. for new years we went to sues house in milton her holiday house it was good to b with her as shes been so sick lately and sitll is i ask everyone to keep her in ur thougths as she has her next three rounds of chemo shes my third cous and is like an aunty to me her mum is grandmas aunty and her mum is fifteen years older than grandma and sues only mums age the rest of my fam r doing good i start cvpp soon in two weeks and am going to the hearing centre on thurs for more talk on the baha the ent and the earing centre are willing to work with us on this so this appt two with hearing centre charge conf later in the year and hp land YAY

happy new year

happy new year to all my firends

oh christmas tree oh christmas tree

it is nearly christmas and boy has this year flown so much has happend good and bad went to ent on wed taking baha to the next stage i have had a very healhty year this year and im very hyappy for that hope evyerone has a very healhty happy christmas

prayers pls

pls send some good old postive thoughts to evas fam again they arent having the best year now her sweet brother is in the hosp with possible crohns and crys has allreayd had cancer pls pray with me that the new year is the best for them and we all get to meet up LOVE U ALL SO MUCH

five words about me

my cous is doing a daily blog challenge up to nye i thought id go along for the ride and you can learn bits you may not know

lovely caring charger great friend

stole this of my cous booby really ruby LOL

mycous is doing a blog challenge till new years so i thought id come along for the ride and give you all someinteresting facts bout me

home town
Sydney australia what do i love about here well it is jsutthe bussiest most interesting and diverse place theres allwyas something going on here go east you got the gorgous beaches where i live go west you got suburbia theres all different cultures to take ur pick we got it over here only prob is our roads are a car park slometimes and our streets have no arking sometiems no wheelchair access and lots of other bad sutff but go to the places old buildings beaches and even out of sydney minutes away form the mountains woolongong and the airport fly drive swim boat and walk ah sydney i love you even for your craziness

the third anual charge it for charge is now here

Hey everyone i have decided to try help with the third anual for charge it for charge event charge it for charge is a anual thing done by the foundation to help raise much needed funds for the foundation id love it if you could donate to me and the chttp://thirdannualcifc.kintera.org/faf/donorReg/donorPledge.asp?ievent=434831&lis=0&kntae434831=E3E0FDD2DFBE4EFC82C24D58B4B36E9A&imgname=Account401534/images/293919_611081650443125.jpg&getMediaFormat=image&view=previewourse

:)

a tribute to my many anasetic people

The other day i was looking at one of the blogs i follow not a charger but soemone i know through moriah and soemone i love the way she writes. She posted a lovely message about how we allwasy recognise oru drs but not the ones that put us to sleep for an op she inspired me i had my endoscopy the other day and then i read her post i thought yes these people are the greatest to if it wasnt for the one who made anesetics easier for new borns and babies i probly wouldnt of been able to have the things i have had as i have relatively small airways. even if they dotn read i would still like to aknolege the work they have done they are the ones that got the drips that many others couldnt get. They were the ones that put the lines in when needed. They were the ones that knew me and didnt even really need to consult they understood me and they knew how to work with what i had. i feel lucky to of known these people and they are great people updates endoscopy went ok was actualy done by them i have hiatus hernia reflux is coz of inflamed oesophegus he says its neurolotical im going to gi on thrus

nearly spring cant believe it

i cant beleive its nearly spring not to much happening here. Am heading to perth in october fr the aus charge conf then next july i am making plans to go to Orlando for the big cahrge conf i hope to meet all my charge families there that i have come to know through fb charge lsit and blogs they include kim claton and her gorgous charger crys and eva moriah and their fam kristy and the swann fam there are soem i know i wont meet but they will b flying with me in the plane all the way love to chis fam and of course mks fam and any other charge angels will be great to meet everyone also going to harrypotter land and some other stuff am goign with sevies fam will b great her mums allways said shed take me to harrypotter land when i relsied where the conf is i said lets do it then they want to go to disney land vagus the place where twilight is and well we cant go to hp land with out doing disney world can we LO looking fwd to seeing everyone at the charge conf and if anyone wants to meet up anywhere in the places we will b jsut let me know i will put a detailed thing on here n fb and the lsit later

YAY JUST READ THE BEST THING

i jstu went to moriahs blog to do my daily check as i do with all my little chargers and shes coming HOME YAY a hole year in hosp and a recovery centre so happy for them happy for christopher to hes home to pls keep sweet mk in ur thougths tho shes getting better everyday and gracie is back in the hosp AGAIN also and i am having an endoxopy in a few weeks jstu to check up on stuff coz of my reflux and stuff