LOVED AMERICA

well on july the tenth i went to the us again have to say it is a great country MOST of the time first went to la in la did madame tussandes holly wood universal and down town it was wonderful  then went to sanfranssisco that was my faveourite place well one of in san fran we walked around the piers walked around town and tried to go to the bridge wich was covered in fog we also did lots of shoppign in sanfran it is a truely beautiful place then went to seattle that was prety to there we jsut went shopping went to the market and went up space needle then from there to CHICAGO  loved chicago i have quite a few firends in chicago so the first day met up with my wonderful friends the krubys and walked around navy pier and went on the ferris wheel i love them they are wonderful people the the next day went to the chicago art institue was wonderful there also walked around some of the lovely buildings and went shopping a little the next day we did the tower and went up michigan avenue then it was on to the charge conf that was wonderful to see everyone saw many firends and made many new ones and we are all looking forward to the next one in chicago i love the conf sooooooo much you really are among family there

  cable car sanfran

water

in the old arcade museum

lol

water

beautiful

city

fire engines

 f

food

bridge in fog

pike place

space needle

view form space needle

loved this

water

chicago skyline

loved chicago

water

skyline

navy pier

ferris wheel

me and jil xxx

sandy and phil

joey

he would not look

sandy

xx

on ride

buildings

loved the stained glass in museum

viw form willis tower

standing on chicago

view form arizona hotel room

sweet andi

board members take a well deserved break at thursday night function

tuto girl

920 people

me and one of the canadian people

me and david wolfe

reuban

amy with reu

LOL REU

xxx

some of the kids out in the foyer area of conf building

catherine rose

the lamber fam

me and deanna

me and deanna

idol

 pam lisa and sheri work out logistics

loved this he playded in orlando to

xx

xxx

lori and sheri hard at work

lori just standing

and shes standing there still

kristin

xx

meri

loved lisas dress

xxx

chantelle

KENNEDY

awards

nancy

david says the confrence of 2015 will be in CHICAGOOOOOOOOOOOOOOOOOOOOO schrumburg chicago

be there or be square haha

listening

awards time  neal falling asleep

MINNIE GOT AWARD FOR TEAM FLAT CHARLIE stay tuned everyone for the adventures of FLAT CHARLOTTE

PAM RYAN WHERE ARE YOU GOING

dominic

xxx

the steinhauser fam

deannas head

had to take this in tims pressentation a photo form last years sydney conf

tim and april presenting the power of jacob

xx

me and corki

sweet baby

xxx

my minnie

sweet grace form vegas saw her two years ago look how big shes got

soem texas love

LOVE TEXAS CHARGERS

finley i gave her a butterfly i call her evas light twin crystal would be happy

 me and finley

xx

x dotn eat that

hugs for my friendxx

 me and connie xxx

reu dancing

catherine and reu

meg melton with a butterfly i gave her

me and brandi

sunday morning adult panel

there they are

up yp

xxx

mummys

adults

xx

xxx

sweet

me and rob

deep thoughts  david

david brown

xx

bye david

see you all in two years YAY

last shots round hotel

rip vera masionis

i know alot of you have heard me talk about the masionis fam eva and crys and dan and them well last june crys died early this morning dan lost his mum his mum was a loving lady she helped with eva after crys passed and she loved her grandkids and her kids lots and lots rip vera you will be missed by all those that knew you XXX

:P cant beleive its nearly easter soon

so excited

am getting excited for my trip stops include la sandiago sanfran seattle chicago then lastly ARIZONA its gonna be sooooooooooo fun YES YES YES not much else is new here i became a person centered champion for northcott last week i get to help others like me have their own voice choice and controll also had respite on the weekend was good

hearing AND FACEBOOK LOL

i titled and facebook c oz ive been thinking about how facebook seems to take over the blogs as i posted to sarah calebs mummy on fb bac when she started we were all commenting and posting alot mroe and then facebook took over we can all update in there back then there were a group of us the group is on my sidebar mne crys and eva caleb his mummy sarah evan and his mummy sarah amy n max cedie and jen then reu and his mummy joined us and victoria and moriah and then christopher n kim then of course the kurbys and many many more as i told sarah i allways commented on all the blogs now it seems the only ones that post so much now are me her and the kurbys and moriah and cahterine evas blog has stoped jen and cedie dont post cedie is now an angel crystals fam of course dont post anymore there are still soem others that post but from the early days its only us we need to keep this up to as kim said one her status one day look back on and remember weather we get comments or not i love my charge fam. On hearing went to the ent couple mroe times once to his audiologist she noited my hearing was down significantly dr cant work out wh but he thinks i would benifit a baha and is willing to try love this dr hes so willing to work wit us also intinery is finaly coming together sandy ill email u dates when are finalised but can you comment here how far you are form center of the city of chicago like r u far out in the suburbs or close in my cous wants to know xxx

also jsut saying hey

just thought id also say how things are going ecverything is good herewent to gi other week everything is good dont have to go back for six months hearing has been down again and now i get tinitis thing when it goes down that comes and goes my hearing is good today so dont know whatis up there still not much else here

charge angels

since christmas quite a few charge angels have passed in the weeks befor christmas four had past and in the past month another two and today another one on the cha4rge group and i was thinking bout our angels and this story came to my mind SANDY HOPE YOU LIKE

sitting here thinking as i read of another charge angel passing and a lovely story is springing to my head so i thought id share here

one day in heaven god looked down he saw all these sweet chargers running around but he also saw some struggling hard to live so he called them each to him soon it got a bit much. As he saw a wonderful mummy named crystal fighting her cancer he knew how she loved and cared for her eva for the past seven years he knew how she loved her charge family and so he said to her come to me come help me to look after all these sweet chargers up here she pleaded she didnt want to leave her family and firends but she knew it was time so she sprouted butterfly wings and off she went. soon all the chargers were very happy to see a wonderful mum among them and there were even some other chargers she knew to help her out. Sweet josh cedie and lucas were all there to greet her like an old firend and introduced her to many of their firends she also had other angels helping not jsut the chargers people she knew through facebook and life like abby and ziva nadia to all welcomed her with open arms and so did the family grandpa abel and mark were so happy to see her doing her work that on her birthday they held a great big party. Christmas came a few more angels were called crys was there waiting to hug them tight the suffering was done she makes sure they visit their families every night and tells them stories of her life. Today another angel was called and i know for sure chrystal masionis was at the gate with her butterfly wings and arms open wide to welcome sweet luke to heaven. god is very happy wiht her work a bit to much so he calls more home to her hope she doesnt get tired in heaven with all these sweeties but she does have the help of the wonderful babies and angels she knew and loved. while we all miss crys here on eareth we smile knowning that she has the most important job in heaven she will be in our dreams tonight and she will tell us about her day with all our friends and she definately rejoices in heaven the way she did with eva and all of us when we acomplished greT THINGS keep up the great work crys we miss YOU

180 days!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

is the time till the charge confrence in arizona THE COUNTDOWN IS ON watcfh out ppl i know sandy has been interested in flat charlie so heres the lates form the group he attended a board meeting with brownie WOOHOO and also if anyone is wishing todonate to our team click here http://fifthannualcifc.kintera.org/faf/donorReg/donorPledge.asp?ievent=1035740&lis=1&kntae1035740=B26F58BAEE4E491B910520B29D4427B1&supId=369224154  in other news had te endoscopy the other week to check on my burps he found no reason for them and said my gut is the best hes ever seen it WOOHOO am now back at cpp after the holidays and ready to get back into it all again also going to become a northcott person centreed champion some of you know of my disability place i go to we asre very into the person centered there now and focusing on self choice and alot mroe person centered champions help people to make these choices and also go and bring it to other services i hope to maybe one day talk about it at a charge confrence and maybe give ppl soem ideas on how they can make the chargers mroe this way to cpp has allreayd become a bit person centered and since then ive seen a few posts in the fb groups where ive said thats not person centered so it would be cool to bring it to a confrence one day oh and also this year at cpp i am loving the garden again last ear when i would hose the garden i could feel crys telling me im like eva this year shell be doing it again LOL happy australia day it is aus day here this country was foundaed as a federation in 1901 AUSSIE AUSSIE OY OY OY CHARGE ON PPL

happy bday flat charlie

well one year ago my lovely firned in charge land minnie a great mummy started a great project for us all called the flat charlie project i posted about it here a couple times last year flat charlie has been very busy traveling the world he has been to the uk CHEZCH caqnada aus to my house and a lot of other places he  even spent soem time with the wonderful DAVID BROWN and skied with tim hartshorne . Flat charlie has had pieces added to him form each place and has gorwn he is getting so full that i hve told minnie she will need to take up weight lifitng and pack an extra suitcase to get to arizona here are soem of the highlights of his journey

flat charlie with sweet little jesse

]

in a shoe

 

happy thanksgiving flat charlie here he was in the keedys

 

charlie sees snow

 

bray and sammy

 

looking over sanfran with david borwn

 

reading a map with the yohos

 

with tori going to disney

 

look how full

 

\sleeping with laynie

 

flat charlie

\

love this

\

portland i dotn understand y davo doesnt like it its beautiful here

 

getting ready for chrismtas with the keedys

 

woohoo

 

xx

 

hard to believe he started as this with his little tiger shoes

 

with MINNIE

 

santa with andi

 

xx

 

see why minnie needs to take up weight lifitng

 

cute

 

really

\

kendra

 

pussy

\

i love the ashtons

 

sweet noah

 

lisa wier gave him a tat

 

and a baha hearing aid

HAPPY BDAY FLAT CHARLIE LOVE FORM ME

hearing test

had my anual hearing test today today as they put it was a good day YAY we never have really figured out why i have those drops

happy new year

ITS THE NEW YEAR happy new year everyone last year a time of crazin ess and good tiems and sad times to last year my brother got married to my lovely sil lauren they got married in vegas various things happened with the fa a much loved member of the charge community passed away we miss crys every single day and lots mroe stuff happened. This year my wish is for everyone to have a lovely happy healthy new year  christmas was spent at my aunty cammys on sat with the fam and tuesday we went down to wylies in the rain and had a swim people came ov er for afternoon tea. Wed we didnt do much On friday daddys brother came down form byron I love them we had a lovely weekend up in the mountains sunday we drove around all the areas of great views and looked at shops sunday we also had dinner with mark an d lynne and yesterday we came home last night we didnt do much we were able to see fireworks at nine from my bedroom and we jsut relaxed today we havent done much going for a swim at clovelly later and a picnic din with the fam liz and phill and ember and everyone not much else happening good to have the year old oen gone onto a better year i hope i have endoscopy in few weeks to check my guts as ive been burping lots and we also got lots of good stuff happening as allwasy

MERRY CHRISTMAS

just want to wish everyone a very merry christmas next year i plan to blog mroe ive really slacked off havent i everything is going good here all ready for christmas now not much news here all the usual stuff

long time no post

wow two months since my last post. I guess i just havent known what to say I am happy to say all is going well here i did have a drop in hearing a few weeks ago no one really knows why still it may jsut be me and my charge. The aus charge conf is very soon in sydney will be great to see everyone again. We all have been good for now alot happening here but ay. I feel spring in the air i also was jsut thinking of blogging as a fb firend jsut posted a status about maybe doing one. I sit here remembering how i started mine it would of been seven years ago after looking at crystal and amys blogs i think it was amy and mighty max that started it as crystal and eva had baby site for a few months at first each pic amy posted i saw it and thought i should start one to so i can keep up and here i am i have gotten attached to many many people since followed many more and i love it soemtiems i think not many peope read because we are all in facebook but then i do have at least one follower not on facebook it is such a great world here such great people and i love it

rip crystal

  well by now people reading will know that crystal evas mummy passed last friday early morning us time. She was a great mum friend and person to everyone that knew and met her as i alwlasy told her and i have told a few others she was only five years older than my sil to the DAY they share a bday. NO WONDER I LOVE MY SIL TO DEATH TO LOL but thats anotehr story. Crys ended up in inpatient hospice and fought very hard to the last the melanomas and the cancer may of wore her down but her spirt still lives on in all our hearts crys you are missed loved and are an amazing herson her lovely bil made this pic and i adore it... I also wrote a story on fb i have an alubm that i call my angel firends on fb and i have put it there and i have a story i would like to share xx

never thought id be adding this to my special angel album seriously I NEVER DID Crystal Yusten Masionis was a very special charge mum and friend to many many many people i have known her since eva was jsut five months old when she joined the charge syndrome list serve we would talk most days in soem way or other weather was a msg on the list or though a blog post or our msn group she had for a while or even just on msn messenger befor i had facebook. There is even a segment on the aus charge seven up video where at the end of my part im on the computer and im talking to crys we would allwys talk about meeting up and we both got facebook together to chicago charge confrence never happend for me but since that one when she said it was going to be in orlando and next to harry potter land we knew i had to come over both of us being harry potter fans LOL. Well she did get the horrible cancer faught bravely and we sitll made our hpland and conf plans and talked eveyr day she was allwyas here for eveyrone even if she wa having a bad day Finaly last year when she finnished the last shot we were jsut a month away form the confrence and we knew it was for real going to happen as i talked to her i fretted about not having things booked YET she would tell me not to worry then finaly i said im booked im coming and then i remember piling all these clothes and taking a pic and sending to her she said you do not need THAT MUCH basicaly i had emptied my hole summer closet in the computer room oh and i think maybe a few of mums things had made the pile but thats another story. Finally i was packed and on my way while in disney i said i am here see you next week she said see you next week then in vegas the plane was layed over delayed we were sposed to meet up with them the next day i had facebooked zara and said oh no we are delayed she said ok hope you get there get there we did at three am and i slept in so didnt meet crys and kim in universal But that night after doing things like swimming and registering i was down in the meet and greet area and i am talking and looking around first i see eva and then i see crys i screamed real loud and hugged them both it was so great to finally meet we spent lots of time together that weekend i didnt want to leave them and come home such a lovely loving family our hearts were shattered when we learnt a month later the cancer had come back as i read eveyr sturggle with treatments i jsut wanted to come back over but i knew i couldnt i would tell her we will be in arizona in 2013 and we sitll talked as much as we could soemtiems i would jsut send her a msg just to say i was thinking of her well in may she we thought was in remission i was so excited i said but please dotncelebrate tooo soon as she did say she had to go back in a month and check to be sure although i knew it would be ok. Then about three weeks ago i learnt of her seizure at home i was like oh noooo then a week or two later brian said she was in hospital going on to hospice my heart sank for them all she had fought so hard with so many loving family and friends around her.. but i kept possibe and last weekend i rang her i am happy i did bedcause it was then that things really got bad i rang her saturday morning my time then later read shed had a bad day but when i spoke to her we told each other we love each other i had said i will see you in arizona she said she would try and be there she told me she was going to the movies the next day i liked that well that part didnt happen i learnt on monday she was inpatient hospice and i just knew it couldnt be good but i kept hoping and i still hoped even till last night but i knew that there was a plan crys have fun with our angels in heaven pls pls give my grandpa a hug for me and tell him not to send me anything crazy on my bday and tell all my other firends in heaven i love them love you crystal love yoiu yusten masionis fam i will allways treasure the memories xxxx  the charge comunity has lost an amazing person her fam has lost an amazing memember her firends lsot an amazing firend but we will carry her words of widsom her love her devotion and more in our hearts for ever. I have even found my self quoting a few things shes said last couple of days and commented on a fb status that soemone had SHE SAID THAT yes it is alive in us all i have many angels over me and around me and im turely blessed and i know she ran to our charge angels like josh cedie alex g not to be confused with HER ALEX lucas jayden tho hes nto a charge angel exactly and many many others and hugged them all tight and is probly playing with them all right now in the sky maybe even doign all the things she used to do for eva here on earth but in heaven pt hipotherapy swimming going to the zoo oh my i can just imagine the fun they are having right now love you crystal and you are allways with us no matter wat xxxxxx

Not in mood

i havent really felt like blogging lately no one will read the only pplthat read one wont be anymore n the other well i dont know.i am doing ok it has been really hard on facebook reading the updates about crystal this week life is so unfair i love my charge fams so much and will miss her and her eva. I have been doing cpp and afford. I know i will be ok i just wish ppl didnt have to go through what they are going through next thursday is my birthday i will be 27 how time flies i imagine i may have another beautiful angel giving me bday kisses. Dad is finally home from hospital n is much better i didnt really say much about it befor but he has had problems he is on new medicines to make him better. Not much else is happening

Keep them comin

Keep them comin pls ppl shes on hospice but gettin better

prayers for crystal pls

I am askign everyone to pray for my special charge friend crystal crystal is evas mummy you will have seen her on my blog pics form charge conf and mention her a few times. she is the one who has done things like bowling for charge does the evas butterfly jewels bracelet and stuff well on fb we have a group for her in wich we all send love and support this is the update form her bil you all must know she was in remission or jsut about and nwo this PLS PRAY AND LOVE

I have an update on Crystal's situation. I learned a few hours ago that Crystal has had problems this week speaking and is now in the hospital. The tumors have spread further into her brain. This is all the information I have right now and do not know yet when she will be released from the hospital or anything else, but I promise to keep everyone posted. Right now, Crystal needs all of our love and all of our prayers, so I ask each and every one of you to please pray for her. I know she is so blessed and fortunate to have so many wonderful people like you on her side. Thank you all very much! ♥ ♥ ♥ ♥ ♥ ♥

Hearing new ent

Last week went to a new ENT he was more willing to help than my old one. He wants to do tests when it's down again. Everything else is good dad has been in hospital getting better and is on new meds. I am going away with mum and grandma on the weekend. Not much else happening

Hearing is down

Hey hopeeveryone has had a good week. i never even went away dad decided to have a tantrum and not go. Mumhad to cancel everything so last weekend i went to my lovly friend kristy house. I had a big reflux on the weekend to and then yesterday my hearing went again same symtoms reflux stuffy nose cough. I hope this is sorted quick today i ho for my tube change and next week dental appt. i hope everyone has a good mothers day this weekend not sure what im doing yet. L

Wow catch up time

Hello blog. I havent posted in a while lol. Well thats because not that much happening. Easter weekend we didnt go to the moubtains. Good friday we stayed home easter sunday we went to the beach and it rained. Ive also been doin stuff at cpp. And spending time with fam. Tomorrow we are going to byron bay to see dads brother for dads birthday. Hopeeveryone is enjoying the lovely days i def am