crysstal evas mummy has been making bracelets like crazy in her time up at the hosp each month will have a different thheme this month is CHARGE in honour of eva and me and all our other chargers pls click on the link each bracelet you buy she will donate the money to the foundation and eac one is named after a charger cyrs is a great woman and i love these bracelets
http://www.etsy.com/shop/EvasButterflyJewels
i am a young girl with charge syndrome charge is very complicated but it doestn stop me form being who i am i am a good friend to everyone everyone loves me
Sunday, 23 January 2011
Wednesday, 19 January 2011
hearing appt and positive thoughts
jsut wanted to say my eharing appt has been moved to the seventh of feb apparently the audiologist has to c a baby thoguth she onlyu sees adults but yeah she has to see a deaf baby urgently so i got bumped the joys of drs and stuff send good thoughts to my lovely evas fam her brothers in hosp again yeah shes a charger like me her buttons on my side her fam r so great and they dotn need this riht now
Tuesday, 18 January 2011
hey
well cant beleive its 2011 last year was a good but fast year hope this years jstu as good for all my firends christmas was spent in the mountains first christmas in memory we havent had to get in our car and drive soemwhere everyone came to us was great i got a new camera book some clothes and other stuff. for new years we went to sues house in milton her holiday house it was good to b with her as shes been so sick lately and sitll is i ask everyone to keep her in ur thougths as she has her next three rounds of chemo shes my third cous and is like an aunty to me her mum is grandmas aunty and her mum is fifteen years older than grandma and sues only mums age the rest of my fam r doing good i start cvpp soon in two weeks and am going to the hearing centre on thurs for more talk on the baha the ent and the earing centre are willing to work with us on this so this appt two with hearing centre charge conf later in the year and hp land YAY
Monday, 3 January 2011
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