update on hearing and bloods

Well Last week i had some blood tests for my hearing mum had talked to one of her firends who knew an old dr of mine who swuggested all of these tests. I got the bloods last monday and got the results all negative for everything especialy what dad has YAY next is a possible mri. The gp is mroe help than the ent at the moment but he keeps going away. My hearing is stgill going up and down today it is down and i told another carer i thought she was the other one her voice sounded the same today. Other things all going well this sunday dads brother is coming down form Byron. Dont get to see him often am excited i am doing well other wise and cant beleive mtwo motns ago today i was cuddling my fave charge fams.

WOW

My hearing has gone down yet again mum never got the meds. But she did talk to her lovely lawyer friend who now works in her office . and she said her gp is deaf blind and she ite have ideas so she rang her. This lady she knows is married to a dr who works at the childrens hosptial and he remembers me she got him on the phone and he suggested way mroe than what my ent has said. More different sorts of bloods not jsut for what dad has and he thinks i need an mri. What a lucky think kathy came to work with my mum LOL coz she has connections with an old dr. We could put her touse . Everything else has been good so much happening in charge land on facebook. It has been craz but i am all good now. I just cant beleive its three months till christmas. i also cant beleive jsut two months ago i was in america in fact two months ago today i was on my way id of been boarding the plane and getting ready to take off. Two months ago today id of been in a world of excitement. Two months ago today charge familys knew that in a week they would see me. Two months ago how fast its flown. I still remember those times and allways will. Meeting with my charge families was amazing. Seeing the places was amazing. I wish i could turn back time and do it all again. Si ce i cant do that I guess ill jsut have to hold the memories  Love to all my friends and family big hugs to crystal and her fam asshe goes through the treatments and hugs to masons fam as he is in hosp and also LOVE YOU EVERYONE

a hundred years and fifteen days WHAT A LIFE

That is how old my great great aunty phyll was when she died last night. She is and was grandmas aunty you see mums side of the fam is very compllicated i put it down to my aunty phyl having kids in her fourties LOL. Basicaly her sister was grandmas mum they had lots of siblings. Well grandmas mum had grandma and three others.well grandmas aunty phyl had mums cousin sue who is really grandmas cousin at liek fourty grandma is 85 and sue is 50 soemthing. Well anyway sue and my mum are close and i think of her as my aunty and her mum was just nin to me coz all sues kids and her grandkids called her nin. Nin was a great woman like grandma is a great strong woman lived at home till she was a few weeks befor a hundred. She has allways had the cheeky side that i have wich soem will call my charge cheeky side but i think could be my jennings family ansestroy cheek LOL. she was a true fighter and passed it to grandma me sue who has had three lots of cancers and survived them no make that FOUR LOTS OF CANCERS as of um last year. one of my cousins who has downs and many many others in my family i jsut love my fam and hope my super strong still driving around grandma makes it as long as my wonderful great great aunty did and i am sure she will and on that note while others remember what they were doing TEN years ago i was in school i sit here thinking well on the tenth aniversary of 9/11 my great great aunty died on the aniversary. send hugs to my wonderful aunty sue and her fam and of course all our wonder fam as i decide weather i want to go to cpp when the funerals on or go to it plus also keep evas mummy my wonderful charge mummy crys in ur thoughts as she gets her treatment from MROE GRRRRRRRRRR maybe nin could send her some of that fight down form heaven pls ninny of mine love u all

hearing update

Well saw ent he ordered the blood test and had no ideas why i would be having these probs but he did say it is a good idea to check specialy as ive had a number of dbts from central lines years ago.. He has given me presedone and hopefuly that will help if not who knows

Getting fustrated

I am so fustrated at the moment. My earing went again last night and its sorta back today. I dont get this its like up and down. i really dont want to loose mhy hearing.. Dads dr wants me to be tested for what he has as its something that could effect every organ and any organ. I am scared that i have it i am sure i dotn they dont even know that its genetic but im worried. Also every time i come to casula wit cpp i over heat ad im sick of it. They wont fix the heating for me ive asked and they say its the building and they won fix it. I wish things could go right again I want to be back in orlando in hogwarts or with my charge fams NOW.  Spring i here and it feels like summer right this econd. Not much else is happening here. just the usual.