MERRY CHRISTMAS

just want to wish everyone a very merry christmas next year i plan to blog mroe ive really slacked off havent i everything is going good here all ready for christmas now not much news here all the usual stuff

long time no post

wow two months since my last post. I guess i just havent known what to say I am happy to say all is going well here i did have a drop in hearing a few weeks ago no one really knows why still it may jsut be me and my charge. The aus charge conf is very soon in sydney will be great to see everyone again. We all have been good for now alot happening here but ay. I feel spring in the air i also was jsut thinking of blogging as a fb firend jsut posted a status about maybe doing one. I sit here remembering how i started mine it would of been seven years ago after looking at crystal and amys blogs i think it was amy and mighty max that started it as crystal and eva had baby site for a few months at first each pic amy posted i saw it and thought i should start one to so i can keep up and here i am i have gotten attached to many many people since followed many more and i love it soemtiems i think not many peope read because we are all in facebook but then i do have at least one follower not on facebook it is such a great world here such great people and i love it

rip crystal

  well by now people reading will know that crystal evas mummy passed last friday early morning us time. She was a great mum friend and person to everyone that knew and met her as i alwlasy told her and i have told a few others she was only five years older than my sil to the DAY they share a bday. NO WONDER I LOVE MY SIL TO DEATH TO LOL but thats anotehr story. Crys ended up in inpatient hospice and fought very hard to the last the melanomas and the cancer may of wore her down but her spirt still lives on in all our hearts crys you are missed loved and are an amazing herson her lovely bil made this pic and i adore it... I also wrote a story on fb i have an alubm that i call my angel firends on fb and i have put it there and i have a story i would like to share xx

never thought id be adding this to my special angel album seriously I NEVER DID Crystal Yusten Masionis was a very special charge mum and friend to many many many people i have known her since eva was jsut five months old when she joined the charge syndrome list serve we would talk most days in soem way or other weather was a msg on the list or though a blog post or our msn group she had for a while or even just on msn messenger befor i had facebook. There is even a segment on the aus charge seven up video where at the end of my part im on the computer and im talking to crys we would allwys talk about meeting up and we both got facebook together to chicago charge confrence never happend for me but since that one when she said it was going to be in orlando and next to harry potter land we knew i had to come over both of us being harry potter fans LOL. Well she did get the horrible cancer faught bravely and we sitll made our hpland and conf plans and talked eveyr day she was allwyas here for eveyrone even if she wa having a bad day Finaly last year when she finnished the last shot we were jsut a month away form the confrence and we knew it was for real going to happen as i talked to her i fretted about not having things booked YET she would tell me not to worry then finaly i said im booked im coming and then i remember piling all these clothes and taking a pic and sending to her she said you do not need THAT MUCH basicaly i had emptied my hole summer closet in the computer room oh and i think maybe a few of mums things had made the pile but thats another story. Finally i was packed and on my way while in disney i said i am here see you next week she said see you next week then in vegas the plane was layed over delayed we were sposed to meet up with them the next day i had facebooked zara and said oh no we are delayed she said ok hope you get there get there we did at three am and i slept in so didnt meet crys and kim in universal But that night after doing things like swimming and registering i was down in the meet and greet area and i am talking and looking around first i see eva and then i see crys i screamed real loud and hugged them both it was so great to finally meet we spent lots of time together that weekend i didnt want to leave them and come home such a lovely loving family our hearts were shattered when we learnt a month later the cancer had come back as i read eveyr sturggle with treatments i jsut wanted to come back over but i knew i couldnt i would tell her we will be in arizona in 2013 and we sitll talked as much as we could soemtiems i would jsut send her a msg just to say i was thinking of her well in may she we thought was in remission i was so excited i said but please dotncelebrate tooo soon as she did say she had to go back in a month and check to be sure although i knew it would be ok. Then about three weeks ago i learnt of her seizure at home i was like oh noooo then a week or two later brian said she was in hospital going on to hospice my heart sank for them all she had fought so hard with so many loving family and friends around her.. but i kept possibe and last weekend i rang her i am happy i did bedcause it was then that things really got bad i rang her saturday morning my time then later read shed had a bad day but when i spoke to her we told each other we love each other i had said i will see you in arizona she said she would try and be there she told me she was going to the movies the next day i liked that well that part didnt happen i learnt on monday she was inpatient hospice and i just knew it couldnt be good but i kept hoping and i still hoped even till last night but i knew that there was a plan crys have fun with our angels in heaven pls pls give my grandpa a hug for me and tell him not to send me anything crazy on my bday and tell all my other firends in heaven i love them love you crystal love yoiu yusten masionis fam i will allways treasure the memories xxxx  the charge comunity has lost an amazing person her fam has lost an amazing memember her firends lsot an amazing firend but we will carry her words of widsom her love her devotion and more in our hearts for ever. I have even found my self quoting a few things shes said last couple of days and commented on a fb status that soemone had SHE SAID THAT yes it is alive in us all i have many angels over me and around me and im turely blessed and i know she ran to our charge angels like josh cedie alex g not to be confused with HER ALEX lucas jayden tho hes nto a charge angel exactly and many many others and hugged them all tight and is probly playing with them all right now in the sky maybe even doign all the things she used to do for eva here on earth but in heaven pt hipotherapy swimming going to the zoo oh my i can just imagine the fun they are having right now love you crystal and you are allways with us no matter wat xxxxxx

Not in mood

i havent really felt like blogging lately no one will read the only pplthat read one wont be anymore n the other well i dont know.i am doing ok it has been really hard on facebook reading the updates about crystal this week life is so unfair i love my charge fams so much and will miss her and her eva. I have been doing cpp and afford. I know i will be ok i just wish ppl didnt have to go through what they are going through next thursday is my birthday i will be 27 how time flies i imagine i may have another beautiful angel giving me bday kisses. Dad is finally home from hospital n is much better i didnt really say much about it befor but he has had problems he is on new medicines to make him better. Not much else is happening

Keep them comin

Keep them comin pls ppl shes on hospice but gettin better

prayers for crystal pls

I am askign everyone to pray for my special charge friend crystal crystal is evas mummy you will have seen her on my blog pics form charge conf and mention her a few times. she is the one who has done things like bowling for charge does the evas butterfly jewels bracelet and stuff well on fb we have a group for her in wich we all send love and support this is the update form her bil you all must know she was in remission or jsut about and nwo this PLS PRAY AND LOVE

I have an update on Crystal's situation. I learned a few hours ago that Crystal has had problems this week speaking and is now in the hospital. The tumors have spread further into her brain. This is all the information I have right now and do not know yet when she will be released from the hospital or anything else, but I promise to keep everyone posted. Right now, Crystal needs all of our love and all of our prayers, so I ask each and every one of you to please pray for her. I know she is so blessed and fortunate to have so many wonderful people like you on her side. Thank you all very much! ♥ ♥ ♥ ♥ ♥ ♥

Hearing new ent

Last week went to a new ENT he was more willing to help than my old one. He wants to do tests when it's down again. Everything else is good dad has been in hospital getting better and is on new meds. I am going away with mum and grandma on the weekend. Not much else happening

Hearing is down

Hey hopeeveryone has had a good week. i never even went away dad decided to have a tantrum and not go. Mumhad to cancel everything so last weekend i went to my lovly friend kristy house. I had a big reflux on the weekend to and then yesterday my hearing went again same symtoms reflux stuffy nose cough. I hope this is sorted quick today i ho for my tube change and next week dental appt. i hope everyone has a good mothers day this weekend not sure what im doing yet. L

Wow catch up time

Hello blog. I havent posted in a while lol. Well thats because not that much happening. Easter weekend we didnt go to the moubtains. Good friday we stayed home easter sunday we went to the beach and it rained. Ive also been doin stuff at cpp. And spending time with fam. Tomorrow we are going to byron bay to see dads brother for dads birthday. Hopeeveryone is enjoying the lovely days i def am

Hey

Hey is anyone outthere? Im goin great. I cant believe its nearly april and easter we arent going away not sure what we are doing yet. The aus confrence is fast aproaching and i have arizona conf in mind. I also met some pp, fromeaster seals tues they came to see cpp and they were all from chicago was very cool. To meet them and show off what we do.

HELLO BLOG LAND

Long time no update i just looked and relised its been a month. Well thats because theres not much to say really everything is the same =. Been busy at cpp and enjoying life and being thankful for everything. Weather has been lovely and winter is coming. I am excited to be going away for easter up to dads brothers place mums brother =also lives up in Byron to will bee good to spend the eqaster long weekend with them all. Not much else is happening

m

Not much is happening here. Cpp is going great and so is everything i=else im now at afford mondays instead of balmain loving. being there two days aweek. I also been swimming alot and enjoying the weather even tho it is almost exactly like orlando sunny mornings rainy afternoons. Hope everyone good

where has the month gone

WHERE DID the month GO. now we are in febuary, I have been well went back cpp last week a very good start to the cpp year. They have three ipads and one of the carers was wondering y i was playing words with firends yesterday when the ipad was right there. VERY ME LOL. our fam has some cool news my wonderful brother david is getting married to my wonderful sil some of you have seen pics of her if u r on fb we all love her very much. They r getting married in VAGAS we arent going but mum mite have a party later in the year. Not much else new here just staying healthy and enjoying what bits of summer we have got had a gorgous swim on monday and i have been swimmin g lots also been raining here lots tho so nice days are golden at the moment LOL. next year we go

ent

ent was good basicaly the mri showed sutff wed knwon since i was little normal charge stuff that happens in there no real reason for the hearing loss id been having but he said to stop things that acrtivate te loss like oesteopathy and stuff but if i stop things that means id have to stop flying n i wanna come to arizona next year but mum says i can probably take something on the plane to help with that im happy was all good though

my new years

well all i did do a happy new year but it soemhow didntdo what i wanted it so i thought id start again. Well 2011 as i said at christmas was a grteat one and this one will be better 2011 ended up in the mou8ntains for me Grandma came up with us and on saturday we went walking around katoomba shops and leura shops to. We were going to have din with the leura cousins but it happened they all came down with chickenpox and because i cant be vaccinated due to live vaccines we couldnt see them But mums brother and my lovely aunty came over later for drinks and we sat and taled and had fun working out what the top hit song the year and month we were born my top singer was madona LOL. We watched the firewors on tv it was amazing as ever. Sunday we jsut came home and stuff Ive also been swimming alot last couple of weeks have bee going to the rsl across the road for a swim to. I also got a new computer.  Hope this year treats you all well stay healthy happy and have fun

New yrhappy new yr