i am a young girl with charge syndrome charge is very complicated but it doestn stop me form being who i am i am a good friend to everyone everyone loves me
Saturday, 26 January 2013
180 days!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
is the time till the charge confrence in arizona THE COUNTDOWN IS ON watcfh out ppl i know sandy has been interested in flat charlie so heres the lates form the group he attended a board meeting with brownie WOOHOO and also if anyone is wishing todonate to our team click here http://fifthannualcifc.kintera.org/faf/donorReg/donorPledge.asp?ievent=1035740&lis=1&kntae1035740=B26F58BAEE4E491B910520B29D4427B1&supId=369224154 in other news had te endoscopy the other week to check on my burps he found no reason for them and said my gut is the best hes ever seen it WOOHOO am now back at cpp after the holidays and ready to get back into it all again also going to become a northcott person centreed champion some of you know of my disability place i go to we asre very into the person centered there now and focusing on self choice and alot mroe person centered champions help people to make these choices and also go and bring it to other services i hope to maybe one day talk about it at a charge confrence and maybe give ppl soem ideas on how they can make the chargers mroe this way to cpp has allreayd become a bit person centered and since then ive seen a few posts in the fb groups where ive said thats not person centered so it would be cool to bring it to a confrence one day oh and also this year at cpp i am loving the garden again last ear when i would hose the garden i could feel crys telling me im like eva this year shell be doing it again LOL happy australia day it is aus day here this country was foundaed as a federation in 1901 AUSSIE AUSSIE OY OY OY CHARGE ON PPL
Friday, 11 January 2013
happy bday flat charlie
well one year ago my lovely firned in charge land minnie a great mummy started a great project for us all called the flat charlie project i posted about it here a couple times last year flat charlie has been very busy traveling the world he has been to the uk CHEZCH caqnada aus to my house and a lot of other places he even spent soem time with the wonderful DAVID BROWN and skied with tim hartshorne . Flat charlie has had pieces added to him form each place and has gorwn he is getting so full that i hve told minnie she will need to take up weight lifitng and pack an extra suitcase to get to arizona here are soem of the highlights of his journey
flat charlie with sweet little jesse
in a shoe
happy thanksgiving flat charlie here he was in the keedys
charlie sees snow
bray and sammy
looking over sanfran with david borwn
reading a map with the yohos
with tori going to disney
look how full
\sleeping with laynie
flat charlie
love this
portland i dotn understand y davo doesnt like it its beautiful here
getting ready for chrismtas with the keedys
woohoo
xx
hard to believe he started as this with his little tiger shoes
with MINNIE
santa with andi
xx
see why minnie needs to take up weight lifitng
cute
really
kendra
pussy
i love the ashtons
sweet noah
lisa wier gave him a tat
and a baha hearing aid
HAPPY BDAY FLAT CHARLIE LOVE FORM ME
Thursday, 10 January 2013
hearing test
had my anual hearing test today today as they put it was a good day YAY we never have really figured out why i have those drops
Tuesday, 1 January 2013
happy new year
ITS THE NEW YEAR happy new year everyone last year a time of crazin ess and good tiems and sad times to last year my brother got married to my lovely sil lauren they got married in vegas various things happened with the fa a much loved member of the charge community passed away we miss crys every single day and lots mroe stuff happened. This year my wish is for everyone to have a lovely happy healthy new year christmas was spent at my aunty cammys on sat with the fam and tuesday we went down to wylies in the rain and had a swim people came ov er for afternoon tea. Wed we didnt do much On friday daddys brother came down form byron I love them we had a lovely weekend up in the mountains sunday we drove around all the areas of great views and looked at shops sunday we also had dinner with mark an d lynne and yesterday we came home last night we didnt do much we were able to see fireworks at nine from my bedroom and we jsut relaxed today we havent done much going for a swim at clovelly later and a picnic din with the fam liz and phill and ember and everyone not much else happening good to have the year old oen gone onto a better year i hope i have endoscopy in few weeks to check my guts as ive been burping lots and we also got lots of good stuff happening as allwasy
Subscribe to:
Posts (Atom)