me and charge

well i thought id tell u my charge i was born 28th june 85 wtih a cleft lip palate reflux hearing loss vsison probs and much nore my mum and dad didnt know what i had they tried to feed me and i would vomit up so they put me in the hosp where they put a feeding gtube and jstoma and a fundo wich didnt work they were told i had charge syndrome a conditon wich was then very rare but is becoming more common www.chargesyndroem.org it stands for coanal artriesia common but doesnt effect me cleft lip palate colabomas wich i have heart wich i dotn have except abnomal veings clot easily growth retardation i have this and have had no hormones hearing loss and ear anomilies i have small eustation tubes no simi circula canals reflux wich i have and now 22 years later as i will b on thurs i am doing very wel no jstoma eating little bit by moth and am working and attending a program for people like me being an adult charger is hard but its great to