i am a young girl with charge syndrome charge is very complicated but it doestn stop me form being who i am i am a good friend to everyone everyone loves me
Saturday, 31 October 2009
another update
well as october ends its time for antoher update as christmas gets nearer things get bussier my cous is all better now and had her first comunion the other week the big stuff going on round here atm is grandpa sadly passed on wed afternoon two years later than drs said he would at 84 form heart failure due to an infection in his stent and stuff he will b missed by all his funerals on monday so we have all been getting ready for tha tmore fam r coming tomoz and monday nite having a big bbq almost as big as christmas hugs to eveyrone out there
Friday, 11 September 2009
more stuff
townsvile was great last weekend we went to a crocoldile park and ate otu eveyr nite swam and had fun my cous is jsut a miracle shes so much better wetn down to wylies yesterday with sue and mum didnt get in the water tho dont blame id nto of eather its jstu to cold yet LOL sues mums better and using a walker grandpa got out of nrursing home he hated ti im doign well jstu happy everythings going smoothly again hugs to all hope that the months leading to christmas r good oens only three months grrrrrr
Saturday, 22 August 2009
thankful
i would liek to thank everyone for keeping my fam in ur thoguths chloe is now out of hosp and still fragile shes not gonna go back to school till at least octobver as well we r really half way through this term only bout foru weeks left OH MY GOD SPRING IS HEAR AND ITS NEARLY SEPT HOW FAST but sues mums in hosp now i love my great great aunty phyl grandpas in his nrusing home so we can all rest easily kinda hugs i had glue ear ill update again soon
Thursday, 20 August 2009
couple mroe updates
well cous is coming home tomorrow YASY shes come so far grandpas going to thenrsing home tomoz and im going to townsvile in two weeks but ent today hopefuly that will b k my ears seem better but also some BIG NEWS i finally got a respite place after wanting one for a few years its same one as kristy goes to and going for trial next week YAY
Saturday, 8 August 2009
Thursday, 6 August 2009
Wednesday, 5 August 2009
another update
jsut wanted to say that my cous breated on her own yesterday vent will b otu soon YAY and kydneys r kickign in YAHOOOOOOOOOOO mums dads beign ntus tho he is insisting on going home even tho he cant ill b happy when it all is over im good tho
Wednesday, 29 July 2009
a couple of pics of my cous
this is sue mums second cous and my third cous sue is grandmas first cous and her mum is grandmas aunty and grandmas mum and her mum were sisters sue has big fam and this is one of her other grandaughters abby
this is chloe my fift cous shes the one in the icu this pic was taken down at sues holiday house at new years shes on their quad bike
sue would hate me for putting this here but here she is nitie and all
and this pic here is a tag that i made of the pic above basicaly says keep her in prayers and abby is her sis to the one in the other pic
this is chloe my fift cous shes the one in the icu this pic was taken down at sues holiday house at new years shes on their quad bike
sue would hate me for putting this here but here she is nitie and all
and this pic here is a tag that i made of the pic above basicaly says keep her in prayers and abby is her sis to the one in the other pic
a small update
jsut thought id update my blog fam who arent follwoing me in fb thru statusees that my cousins is getting thjere dowm to the smaller vent keep those thougths going eveyrone and grandpa got his age care assesment we donno much yet we r sitll doing our usual stuff we r planning to go c davo and his lovely lady soon looking fwd to that and i have camp in sept yay
Saturday, 11 July 2009
posotove thougths pls
some of u may know of mums cous sue who she swims with every day and is veyr close to and we all r reallyu think of her as my aunty not my grandmas first cousin who is really mums age lol she does look like mum so shes a second cam or liz to me well ehr grandaughter is in the icu in organ failur got swine flu pray for them but also for the hosptial who r apparaently getting mroe and mroe cases jsut now and hope summer comes quick LOL
Friday, 10 July 2009
july june update
not much new has happende with me n my fam grandpas back in the hospice yet again but was home for my bday wich was good i had a great day dads all better now and we r all doing good mums cousins grandaughters in the icu at my old hosp with the stupid swine flu so mum hasnt been swimming with ehr coz well shes nto alloud out or when she is shes living up there so guess u could say shes learning wat i had to do in hospitals lol
Tuesday, 2 June 2009
still here
yes still am here and three weeks till my bday i will b 24 i have been thru alot in my life but im grateful for those who have entred my life to show me there love and happiness soem fam updates mum is doing well dads got his heart fixed u had two stents put in has a family history nearly all of his unlcles and auntys on his granddads side and stuff died of anginas so its realy there mums dads still around we jsut had his bday the other week i am doing well to am now an offical adovate for a disability place in nsw aus YAY go me everything comes jsut give it time lol
Monday, 13 April 2009
updates on stuffs
i know i havent posted much in ages everythings going well round here for nwo last endo appt was great though i have a bit to much weight on so need to be careful also next round of bloods she wants to do baselines for diabetes as i have a fam history of it mums got it her dads got it and people on grandmas side have had it also dadhas abnormal sugars ive grandas doign ok hes in hosptial again has been the last to weeks but he was home for the day over easter i go to an oesteopath who is helping me to walk more and lots of sreat sutff we had a great easter friday didnt do much saturday we went out to lunch with grandma and grandp yesterday we went to grandmashouse and had lunch again today jsut stayed on here all day
Friday, 10 April 2009
Saturday, 21 March 2009
urgent prayers needed for moriah
"A while back, our family friend, Gina, emailed me about doing a prayer vigil for Moriah. After Moriah almost stopped breathing this morning, I really felt led to do this now.Please join me in purposeful prayer this weekend in praying for my little girl. In whichever way you feel led, let us lift Moriah up to the Lord together, and pray for the source of this infection to be found, and for it to be resolved. For guidance and wisdom for the Nurses and Doctors...if any other tests need to be done or repeated...that they would know what to do to help Moriah get better.In Jesus' name I pray for my daughter to be healed, and that this infection would be done - once and for all.Email, text, call anyone you think would join us in this.Thank you all so much for your love and support.Will continue to update.Love,Victoria"
http://www.momentswithmoriah.blogspot.com/
would b great if everyone one coppied and pasted saw reus mum did it but icf we all past it aroudn who knows and also go leave them a comment to let them know ur thinking of them to big hugs
http://www.momentswithmoriah.blogspot.com/
would b great if everyone one coppied and pasted saw reus mum did it but icf we all past it aroudn who knows and also go leave them a comment to let them know ur thinking of them to big hugs
urgent prayers needed for moriah
"A while back, our family friend, Gina, emailed me about doing a prayer vigil for Moriah. After Moriah almost stopped breathing this morning, I really felt led to do this now.Please join me in purposeful prayer this weekend in praying for my little girl. In whichever way you feel led, let us lift Moriah up to the Lord together, and pray for the source of this infection to be found, and for it to be resolved. For guidance and wisdom for the Nurses and Doctors...if any other tests need to be done or repeated...that they would know what to do to help Moriah get better.In Jesus' name I pray for my daughter to be healed, and that this infection would be done - once and for all.Email, text, call anyone you think would join us in this.Thank you all so much for your love and support.Will continue to update.Love,Victoria"
http://www.momentswithmoriah.blogspot.com/
would b great if everyone one coppied and pasted saw reus mum did it but icf we all past it aroudn who knows and also go leave them a comment to let them know ur thinking of them to big hugs
http://www.momentswithmoriah.blogspot.com/
would b great if everyone one coppied and pasted saw reus mum did it but icf we all past it aroudn who knows and also go leave them a comment to let them know ur thinking of them to big hugs
Tuesday, 3 March 2009
STARLIGHT DAY help our kids
there are jsut some places that touch our hears coz we are a part of them like charge but some are also coz you see the great work they do for others one play that i have been with through hosptials and seen greatr work is the starlight foundation australia they have rooms set up in kids hospitals in aus and are looking for volanteers to raise money
The Starlight Children’s Foundation is again appealing to the community to help bring love, laughter and support to seriously ill children and their families by generously volunteering their time for Starlight’s biggest annual fundraiser across Australia - Starlight Day on Friday 1st May 2009.
This year we’re aiming for 4,900 volunteers to help us raise more than $1.6 million, and we need your help.
We’re asking our supporters to help us spread the word about becoming a Starlight Day Volunteer. On the Starlight website we’ve setup a page with all the info potential volunteers need to sign up, as well as all the tools you’ll need to spread the word via your social network.
Check it out at http://www.starlight.org.au/Howyoucanhelp/Pages/Volunteering.aspx
with out these great people i would of been very bored in my times in hospitals like so many others so help these people put more smiles on faces jsut like mine and even if you cant volanteer donate money theres a donate online page there to
The Starlight Children’s Foundation is again appealing to the community to help bring love, laughter and support to seriously ill children and their families by generously volunteering their time for Starlight’s biggest annual fundraiser across Australia - Starlight Day on Friday 1st May 2009.
This year we’re aiming for 4,900 volunteers to help us raise more than $1.6 million, and we need your help.
We’re asking our supporters to help us spread the word about becoming a Starlight Day Volunteer. On the Starlight website we’ve setup a page with all the info potential volunteers need to sign up, as well as all the tools you’ll need to spread the word via your social network.
Check it out at http://www.starlight.org.au/Howyoucanhelp/Pages/Volunteering.aspx
with out these great people i would of been very bored in my times in hospitals like so many others so help these people put more smiles on faces jsut like mine and even if you cant volanteer donate money theres a donate online page there to
Tuesday, 10 February 2009
sending hugs to many
so much is happening these days its jsut amazing half of victorias on fire from bushfires long weeks of hot humid days luckily sydneys k but theresfloods in qld to
sending hugs to many
tonight i am sending hugs to moriah and fam she is very sick with sepsis or soemthing ive had this many imes very scarey and of course to the victoria victims of bushfires in aus if youve watched on the news now up to two hundred dead wow what a world we r in how we take each day forgraned and jsut take each day it comes and say thank you for it
Monday, 12 January 2009
its the new year
well its new year now its hard to believe how quick that last one went now we are nearly at feb i am at roselands in two weeks ive been away alot been down the stouh coast and in the mountains and ive also been siwmming lots to
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