new layout and endo appt

hope u all like my new layout endo appt a couple of weeks ago was great over heating could be two things going again in six months he thinks its all down to the cleft palate people with clefts often have the same probs he said  i am doing well other wise think i could have nother ear infection bit sore been cold here lately but we r all well and hapy

reflux update

well tube change if anything i think made the reflux worse and fentintinal made me vomit more hmmmmmmmmmmmmmmm oh well

tummy update

saw gastro dr today havent see him in his room for THREE YEARS!!!!!!!!!!!!!!!!!!!!!!!!! Reflux will hopefuly get better after tube change on frday jsut what i thought hed say everything else is good keep evas mummy in ur thougths pls she needs chemo now i love my eva and her mummy and there fam they r the greatest charge fam or one of the greatest  also if anyone still wants to donate to my walk with me page you can still do it til the 14th of may. All up nrotycott raised 4000 dollars for respite but more would be great thanks the link is about two posts down. OR if you are in fb and my firend jstu go to my profile and go to links you will see it there

positive thoughts pllssssssssssssss

soemtiems i think caring for us is what makes oru mummys sick. Sometiems i think they work to hard one of those definately does my wonderful charge mummy crys she has to go into hosp next week to get a cancer spot pls send positve thoughts that there isnt any in any other spots so far so good.. also keep wonderful chi in ur thougths he was sposed to come home today and now possible has an infection could it be form the hosptial those places r known for infections hes the one under eva in links.

UP COMING APPTS

well the other week i had ent found a middle ear infection wich is better now. Next is my tummy an whos records accordign to the secatary hastn seen me in FOUR YEARS WOW bt i have seen him since jsut not in his rooms. Next is my new endo  dr as my old one has moved to another job and catn see me anymore will update as eac one coems up. other news my new old chair fell aprt a few months ago and i need another new one getting money back soon i am particpating in walk with me for nrothcott my service. to sponser jsut do this  

Hi,Ihave decided to walk for Northcott Disability Services (a Member
ofAbility First Australia) on 2nd May, will you join me? You can
eithersponsor me or walk with me and raise much needed funds yourself
forpeople living with disabilities. The ...walk is an easy one, around
the...Doyle
Oval in the beautiful Kings School gro...unds in North
Parramatta.IfNorthcott is new to you, they provide services for people
with a broadrange of disabilities including physical, intellectual,
sensory,acquired and degenerative disabilities, as well as
challengingbehaviours. Some clients with rare or lesser known
disabilities findNorthcottto be the only provider of appropriate support and services.Northcott's website address www.northcott.org.au To sponsor me or tofind out more about my Walk, visit my web page http://www.thankq.net.au/tq_community_abifa?Ref=P10439/145  

and click on the link to visit my page. not much else new jsut the usual stuff

about my side pics

You may notice a few new side pics there. these are all chargers one is oru eva who i have followed form the very start. One is chis new blog a newish charger who is going through a lot the other chi one is was his other one but now its his mums but i keep it there and the otehr is moriah then below them i have links to people i follow. One is carrie chris and evas friend a wonderful woan and i admire her strenth. One is a firend of vicotiras moriahs mum who i have seen on there blog many times and i love her comments . Then there is reu eva and a few other chargers and we cant forget my lovely cousins ruby and my wonderful aunty lynne if anyone wants a pressie idea jsut opop over to omnia my link at the side that is my aunty and if you tell her you know me shell ship for free or ould she LOL. hope you all enjoy my new links

dotn know what i want to say but i wanted to say soemthing hey everyone

its the new year

so another year has started lets hope its a good one for all im am doing well walked over 400metres the other day in surf and all wonderful been seein family firends and places as suual not muchnew to report

another update

well as october ends its time for antoher update as christmas gets nearer things get bussier my cous is all better now and had her first comunion the other week the big stuff going on round here atm is grandpa sadly passed on wed afternoon two years later than drs said he would at 84 form heart failure due to an infection in his stent and stuff he will b missed by all his funerals on monday so we have all been getting ready for tha tmore fam r coming tomoz and monday nite having a big bbq almost as big as christmas hugs to eveyrone out there

more stuff

townsvile was great last weekend we went to a crocoldile park and ate otu eveyr nite swam and had fun my cous is jsut a miracle shes so much better wetn down to wylies yesterday with sue and mum didnt get in the water tho dont blame id nto of eather its jstu to cold yet LOL sues mums better and using a walker grandpa got out of nrursing home he hated ti im doign well jstu happy everythings going smoothly again hugs to all hope that the months leading to christmas r good oens only three months grrrrrr

thankful

i would liek to thank everyone for keeping my fam in ur thoguths chloe is now out of hosp and still fragile shes not gonna go back to school till at least octobver as well we r really half way through this term only bout foru weeks left OH MY GOD SPRING IS HEAR AND ITS NEARLY SEPT HOW FAST but sues mums in hosp now i love my great great aunty phyl grandpas in his nrusing home so we can all rest easily kinda hugs i had glue ear ill update again soon

couple mroe updates

well cous is coming home tomorrow YASY shes come so far grandpas going to thenrsing home tomoz and im going to townsvile in two weeks but ent today hopefuly that will b k my ears seem better but also some BIG NEWS i finally got a respite place after wanting one for a few years its same one as kristy goes to and going for trial next week YAY

my cous is on the ward the renal ward YAY im going to ent in a couple of weeks then to twonsvile to see my wonderful brother yay

another update

her vent is OUT YAYYYYYYYYYYYY but the kidneys still r not wroking

another update

jsut wanted to say that my cous breated on her own yesterday vent will b otu soon YAY and kydneys r kickign in YAHOOOOOOOOOOO mums dads beign ntus tho he is insisting on going home even tho he cant ill b happy when it all is over im good tho

a couple of pics of my cous

this is sue mums second cous and my third cous sue is grandmas first cous and her mum is grandmas aunty and grandmas mum and her mum were sisters sue has big fam and this is one of her other grandaughters abby

this is chloe my fift cous shes the one in the icu this pic was taken down at sues holiday house at new years shes on their quad bike
sue would hate me for putting this here but here she is nitie and all

and this pic here is a tag that i made of the pic above basicaly says keep her in prayers and abby is her sis to the one in the other pic

a small update

jsut thought id update my blog fam who arent follwoing me in fb thru statusees that my cousins is getting thjere dowm to the smaller vent keep those thougths going eveyrone and grandpa got his age care assesment we donno much yet we r sitll doing our usual stuff we r planning to go c davo and his lovely lady soon looking fwd to that and i have camp in sept yay

posotove thougths pls

some of u may know of mums cous sue who she swims with every day and is veyr close to and we all r reallyu think of her as my aunty not my grandmas first cousin who is really mums age lol she does look like mum so shes a second cam or liz to me well ehr grandaughter is in the icu in organ failur got swine flu pray for them but also for the hosptial who r apparaently getting mroe and mroe cases jsut now and hope summer comes quick LOL

july june update

not much new has happende with me n my fam grandpas back in the hospice yet again but was home for my bday wich was good i had a great day dads all better now and we r all doing good mums cousins grandaughters in the icu at my old hosp with the stupid swine flu so mum hasnt been swimming with ehr coz well shes nto alloud out or when she is shes living up there so guess u could say shes learning wat i had to do in hospitals lol

still here

yes still am here and three weeks till my bday i will b 24 i have been thru alot in my life but im grateful for those who have entred my life to show me there love and happiness soem fam updates mum is doing well dads got his heart fixed u had two stents put in has a family history nearly all of his unlcles and auntys on his granddads side and stuff died of anginas so its realy there mums dads still around we jsut had his bday the other week i am doing well to am now an offical adovate for a disability place in nsw aus YAY go me everything comes jsut give it time lol