i am a young girl with charge syndrome charge is very complicated but it doestn stop me form being who i am i am a good friend to everyone everyone loves me
Wednesday, 28 December 2011
another christmas over
Well another chrismtas over. I had a lovely chrismtas in the mountains with the fam Christmas eve we had din hee with my mums cous and my aunty thats mums oldest friend was a lovely dinner then sunday we opened pressies and went tolerua we ended up at our house and found mums wonderful brother n fam there mum n mandy ended up in kitchen making salads and then we all went to my cousins for christmas. It did start to rain at one point but simon and yevette had big umbrellas out and a nice cover on their deck pressies were a mad house with even a bit of regifting mum soemhow got a kids pressie so she gave that to one of the kids that had nothing. After food we went back to the faqirmont for a good sleep then monday we all sat round the pool swimming chatting hoding my new baby cous and i even ran into a charge fam. Left overs were also brought over by simon and yevette and john and mandy brought stuff to so food was inhaled kids watched movies then we had pizzas and pudding in our sweet with the hole fam soem went and watched another movie and lots mroe talking was had. Yesterday me and mum and dad went on a walk with my wonderful aunty an d uncle then we had to come home the mist over the mountains was spectacular and it wasw cold now we usualy have hot this time of year . Now for new year this has been a hard year for many and a fun year for many for me it has been bit of everything with highlights being charge conf harrypotter land disney lego land well my trip away anyway moments with fam and friends and of course being me.i do hpe the new year br4ings peace happiness and good health to EVERYONE just stay positive and keep going LOVE U ALL and im hear wit ya all
Thursday, 15 December 2011
ahhhhhhhhhhhhhhhhhhhh yes
today is thrusday. Today i go swimming. One mroe week of cpp left for th year. So many parties and things for this time of year Last week i had the afford christmas party it was so fun on the farm i even went on a tractor ride and my chair went on a tip back to. Satuday was the northcott rec party it was great and sunday we went shopping. Next week i will be in respite and roselnads christmas party yummmmmmmmmmmmmm then leura for christmas yay i love this time of year xx
Friday, 9 December 2011
Thursday, 8 December 2011
two weeks
i cant believe in two weeks its Christmas. Last friday i went to the book launch for a book the aus charge foundation have been working on they book is called why i am me all about charge syndrome. It was a great launch and the book is great it is available through www.chargesyndrome.org.au . I enjoyed reading it i helped tem a bit with some of it to was great to see everyone and to catch up again. Tomorrow i have the aford christmas party and i hope its not raining. Next wekk there is more stuff then the week after i will be in respite and more stuff happening. I cant beleive how fast this year has flown hope everyone is having a good end to the year and hope chrismtas is a good one to. This year i will be in the mountains for christmas YY . I cant wait to meet my little cousin that was born in november and mum better hurry up she hasnt even started her shopping.
Tuesday, 6 December 2011
an invitation to join a wonderful project
Hey all well didnt even have ent yesterday mum canceled it but i just wanted to give all of you charge fams a heads up and ask you to pls join a wonderful project minnie made. Some of you form orlando will know minnie and her fam but for those who dont shes a charge mum n my fb friend.
Hello Everyone~
The first rule is that you must be a CHARGE family to particpate in this
project. Any others that may join this group to keep track of Flat
Charlie may participate by going to the CHARGE Syndrome Foundation
website and clicking on CHARGE it for CHARGE and making a donation to
any of the families on the team.
Here
are the instructions for joining Team Flat Charlie through the CHARGE
Syndrome Foundation..all host families will have to join to be able to
send their donations in to count towards the teams goal. You will a a
fundraiser but be a part of a team as well.
Hello Everyone~
A recent book that Andrew and his class read has inspired me to kick
off a very unique fundraising project to benefit the CHARGE Syndrome
Foundation. Andrew's class read a book entitled "Flat Stanley". There is
a project that goes along with the book that takes Flat Stanley on a
journey.
Now own to OUR project. With the help of many of you here I am hoping to launch The Flat Charlie Project.
You may ask who is Flat Charlie?
Flat Charlie is a little guy that needs you help to become whole and
make it the the 11th International CHARGE Syndrome Conference in Arizona
in 2013.
How can you help Flat Charlie?
Flat Charlie is in
search of host families that will take care of him and add a missing
piece to him. This family will also have to raise money to help send him
on to his next destination as he CHARGEs around the world on his way to
the CHARGE Syndrome Conference in Arizona.
I am searching for
families that will be willing to be a host family for Flat Charlie. Flat
Charlie will be nothing more that a blank little paper boy that will
leave our home first. Andrew and I will add a very special piece to him
to help him on his journey. When he arrives to your home the amount time
that you keep him will depend on just how many CHARGE families we can
get involved. He will arrive with a list of his host families and a map
of his journey..you will cross you families name off of the list and
mark your spot in the map and send him to his next destination.
Now
for the FUN part..Let's get the KIDS involved! I have also made a group
page called "The Flat Charlie" group. You can go to this page and
upload pictures of your family with Flat Charlie.. Make posts of what
your family is doing with him..and let the next family know that he is
on the way.Let's keep everyone informed as to what he is doing!
It
will be each families responsibility to raise money to sponsor the leg
of the journey. We ask that each family raise at least $100. How you
raise that money is up to you..you can take up donations from others
that what to sponsor your family as a host family or Flat Charlie and
your family could have a bake sale..However you do it is up to you..Just
keep the kids involved!
A team has been set up with the CHARGE
Syndrome Foundation called the Flat Charlie Team..this is where all the
money will go. The Foundation limits to 20 members per team but do not
worry we will create as many teams as we need. We will all be individual
members of the same team.
I am excited to launch this project and I
hope that you will want to join my family in helping Flat Charlie reach
the 11th International CHARGE Syndrome Conference in Arizona in 2013!!!
Sign up and let's see just how we can all work together as one!
Let's help Flat Charlie CHARGE his way to Arizona!!!
(We will take as many families as we can..amount of time spent at each
destination will be determined after the exact number of families known.
The goal of this project is to get the kids and their families involved
in a fun exercise to help support the CHARGE Syndrome Foundation. The
project is expected to launch in February and the final destination will
bring him back to our family in May of 2013. He will be presented to
the Foundation from all of the families involved at the 11th
International CHARGE Syndrome Conference in Arizona, along with a grand
total of how much money he has collected along his journey. All info
will be sent in the form of email to keep the cost of sending Flat
Charlie to his next destination as low as possible. We are trying to
raise money so we will keep the cost down as low as possible for each
family.)please spread the word. We
want as many families included in this as possible. I will also be
making a post on the Listserve! anyone who needs me can reach me via
email mllambert123@yahoo.com I look forward to watching this grow into
something huge! Together we can make The Flat Charlie Project a great
success!
The first rule is that you must be a CHARGE family to particpate in this
project. Any others that may join this group to keep track of Flat
Charlie may participate by going to the CHARGE Syndrome Foundation
website and clicking on CHARGE it for CHARGE and making a donation to
any of the families on the team.
If you a...re a interested CHARGE family keep reading...
When I was thinking of this project I always wanted it to be something
that the families as a whole could help with. I think that it is
important to get the children involved as much as possible. When FLat
Charlie arrives to your family he will be missing lots of things. It
will be your responsiblity to add a missing piece to him. This is a way
for him to belong to all of the children. Be as creative as you would
like just remember to use materials that are as lightweight as possible.
We have to keep in mind that each family will have to pay postage for
his travels and we ned to keep him as light as possible.
It will be interesing to see where your family will take Flat
Charlie..what kind of adventure will you guys take together. This will
be a way for you to show us your town and your family. You will be able
to add your phots right here to this page and make posts about what you
and your family are doing with Flat Charlie. The kids can even check
this page to see where he is at any time that they wish.
After you leg of his journey is over you can email me a letter about you
experience with him while he was with you..include pictures too if you
wish.
Flat Charlie will arrive to you with a map for his scheduled
destinations and a list of his other host families..just mark your spot
on the map and cross out your families name and send the list and map on
with him to his next stop. The amount of time each family gets to spend
with Flat Charlie depends on the number of participants that we have in
the project. I hope to give each family as much time with him as
possible. I will try to group certain places together to cut down on
travel time. The last leg of his journey will send him back to my family
and we will be responsible for getting him to Arizona in 2013.
Now on to the funding..
It will also be each families respnsiblity to raise funds to "pay" for
their leg of Flat Charlie's journey. I am hoping that each family raise
at least $100 but the possiblies are endless. The way you raise this
money will be up to you and your family. You can begin at anytime..not
just while you have Flat Charlie. There is a Team Flat Charlie set up
through the CHARGE Syndrome Foundation website under the CHARGE it for
CHARGE tab..follow the steps in the post on this site to become a
memeber of the team. I can provide you will the picture of Flat Charlie
that I am using if you would like to have it for you personal page
picture or jsut use any picture that you wish.
If you have any questuons or concerns I am available to asnwer them at anytime.
I look forward to all of us working together to make the Flat Charlie Project a complete sucess!
Here
are the instructions for joining Team Flat Charlie through the CHARGE
Syndrome Foundation..all host families will have to join to be able to
send their donations in to count towards the teams goal. You will a a
fundraiser but be a part of a team as well.
1. Go to the CHARGE Syndrome Foundation Site
2. Click on CHARGE it for CHARGE
3. To the right you will see TEAM RANK..click MORE
4. Click on Team Flat Charlie..my name will also appear there
... 5. Click on the tab to JOIN OUR TEAM
Then just follow the instructions to create you our page..you can put
any picture that you will like on your private page or I can email you
the clip of Flat Charlie.
Now let's get STARTED!
oh and a tip form lisa wier if you are allreayd in the charge it for charge thing as a sparate indevidual you will need to create a new page to join the team pls message minnie on fb or at mllambert`123@yahoo.com I hope you can join us in supporting the charge foundation and helping us with this oh and for non charge readers of my blog i will soon provide you with a link to donate to my fundraiser for the flat charlie project oh and feel free to pass on to any other charge fams the mroe we get the more money and funds we raise
Friday, 25 November 2011
mri
Well I had the mri today and i think it went good but we wont know till we see the dr. It was only half an hour and i had to take out my aids but everything went good. They offered e a tv screen but i didnt want it coz if i have my aids out how would i hear it and i didnt know how i would see it eather as you are sposed to stay still n not move. they put a helmet over the top of my head and i heard soem of the noised not much tho so soon we go to ent show him the cd they gave us and see what he says
Thursday, 24 November 2011
thankful
Though we dont do thanksgiving out here as alot of my charge fams do in america today i just wanted to wish everyone a very happy thanksgiving from me. Things i am thankful for today are my charge family, my family My wonderful drs and nruses who have looked after me over the years, My wonderful teachers that have helped me when i was in school, My lovely northcott carers and other northcott support staff especialy my cpp carers my firends and their fams and oi am trhankful for the internet and being able to connect with many people all over the world. I am thankful i wass able to go to orlando and meet so many wonderful charge fams klove you all
Monday, 21 November 2011
mri this week
just letting u all know my mri is this fri funny thing is my hearings been k lately hm
Thursday, 17 November 2011
HMMMM
I have now done all my chrismtas shopping and now am ready for chrismtas LOL. other things r all good. I ccant beleive its nearly christmas i ave my mri next week not much else new here. I ha e been swimming again and loving it I love to swim so much.
Monday, 14 November 2011
A bit concerning seriously
WOW as me and mum and dad were walking with mums cous down towards the beach yesterday we ran into my great aunty and got talking. She informed mum she had breast cancer a month ago had surgery. The concerning part is she had told grandma and greandma never told us wow she is a lovely wonderful fit lady with a great atitude t life but it was very surprising to hear her say it and more surprising that grandma knew and didnt say anything. Cancer is nto soemthing u jsut forget to tell soemone. Her husband is grandmas brother they r twenty years younger than grandma is. I love grandmas fam and i love my great aunty very much and i hope she goes well with her radiation and i seriously hope grandma hasnt got dementia or soenthing as i adore her to bits to. other things are going greatr. Roselands is so much cooler now days so much easier coz not as hot. Not much else is happening here justall the normal stuff
Thursday, 3 November 2011
where did the year go
as i sit here bad at Roselands house i wonder WHERE DID THE YEAR GO. We are allready talking a bout christmas in stores i saw on fb someones gonna start their shopping. In two weeks i am christmas shopping with cpp it will be great. This christmas we will all b in the mountains it is gonna b great. Though we dont celebrate the american thanksgiving there are allways many things i am thankful for and i thought id list them here i am thankful and remember these things when we wish everyone happy thanksgiving on the charge lsit serve. my thankful list My health My family and firends. Going to orlando in july and seeing hp land and meeting so many charge faqms like the krubys crystal and many many more, i am thankful for my lovely sil and my brother living with us., I am thankful that my friends are still with me today and i can remove the negative things out of my life if i need to i am thankful for the little things that happen every day the flowers the prety things in life the people around even the little smile from afar we all have much to be thankfulo and happy about and am feeling very happy and thankfu now
Friday, 28 October 2011
two years REALLY
two years ago today grandpa left this earth was it really that long ago. His end was a hard one drs had given him six weeks about two years befor due to pancreatic cancer two years later many stents hosptialisations and tiems we thought he would pass he went. He had gotten an infection in the stent wich had gotten into his bowels wich had caused heart failiure. Grandpa was a veyr lovely charming man he loved mladys he was allways cheeky with everyone ever wondered where my cheeky side came form grandpa and grandma were together for nearly sixty years and grandma is still around at 85 ive allways loved my grandparents allwasy been very close to them mums parents would allwas do anything for me. grandpa would come up and see me in hospital even if he was in grandma would come up eveyr day to they did many things for me and grandma still does grandpa and grandma are the best and i am lucky i am old enough to know them both dads parents didnt live long enough for me to reemmber dads daddy died when i was about five r six i do have a few pics of him tho one wich i love is on where he is trying to get me to throw a foot ball to my brother and i guess i wasnt that into sport even then coz i was staring at the ball like wat u want me to do here dads mum went when i was eleven she was a great woman to she to had died of cancer i am lucky grandmas still around i love my fam so very much miss you grandpa poppy and nannie wish i could see you again and hug you again
Monday, 24 October 2011
back to roselands yay
Hello all. I am very happy now tht cpp has or is finaly returning back to normal. Last friday we came back to roselands house after six long months it is looking great. Today i am back to the mnormal place where i can do my programmes normally such as editing my blogs on here. Other things im still going good. Last thursday i had my tube change with local nasetic lincatane it was ok. There is a special whistle you can use to but they didnt want to use it on me as it can course kidney probs and as chargers do have odd kidneys we dotn want to do that. I do have one kidne larger than the other and used to have reflux in there. The tube change went great i felt everything a bit but it was ok. We went to xray to try get my mri there is a month waiting list how crazy is that.. Other things are doing good i cant beleive it is getting close to the end of the year again i relised a while ago ive blogged more this year than other years. I think i should keep this up, I have even done my chrismtas shopping well practicaly basicaly all those bracelets ive got on crys evas mummys site over the year is going as xmas gtifts to people only ones that need presents to be brought are my brother dad who i got male carers at cpp and the male mannager person at afford everyone else will be getting a special hand made bracelet that will have a special story attached weather its for charge syndrome or cancer or crohns each of crys bracelets are special and i love them. I also cant beleive alot of the shops have christmas stuff so early i even got my cards a few weeks ago and am organising the xmas card exchange so as allwasy this tiem of year lots happening i do beleive i have a few drs i should see befor the year ends dental ent again and maybe endo i missed the one i=six months ago i love this time of the year it is allready warming up tho and i dotn like it to ot but the flowers are out and gorgous and the smells and sites are great hope everything else stays good for now.
Tuesday, 11 October 2011
Help crystal masionis and family
some who read my blog would know of Crystal and eva masionis and soem will be aware that the fam has had a very hard time the past year with crys having cancer her eldest having crohns and of course eva being a charger jsut going to drs for check ups this all creates alot of bills specialy since crys has had cancer treatments again so one of her firends created a page for us all to donate http://www.helpcrystal.com/ it is a pay pal thing very easy jsut select the ammount on the side then click the paypal part and if you have an account sign in if not sign up and thee its done and also pass this around for her and for us all. if you anyone wants to read mroe about the family click on my link at the side that says eva or the picture that says eva nicole hugs
Monday, 10 October 2011
to my special mummys
i found this on another blog not a charge but a special needs one the mummy posted this this is for all my special mummys out there specialy crys and sandy and all other mums LOVE YA ALL
Dear mommy,
I have felt your tears, falling on my face.
Someone else might think they are tears of sadness, because of what I can't do.
I KNOW DIFFERENT.
I know those tears pour from your heart out of gratitude for me, because of what I CAN do : I can love everyone in the purest form possible. Unconditionally. I can be judged, but will never judge in return.
I know different because I feel, in your hugs and kisses, that I'm perfect just the way I am.
I have seen you hang your head down in shame, when we go out on adventures.
Someone else might think you are ashamed of having a child like me.
I KNOW DIFFERENT.
I know you are ashamed of the grown-ups who ignore me, yet talk happily to all the other children. The grown-ups who won't look you in the eye, but stare at me, when they think you don't see. I know different because I've seen the many, many more times you have raised your head up high, with pride, because I'm yours. : )
I have heard you whispering desperate prayers at night. Someone else might think you are asking God to make me a typical kid.
I KNOW DIFFERENT.
I know you are thanking Him that I got to be here, with you, for another day- exactly how I am. I know different because I have heard you ask me never to leave you. And I have heard you cheer for me, every single day of my life- you tell me I don't need to be typical to be amazing, I just need to be here.
I know you have a big job, taking care of me.
I know your body hurts, because I'm getting so big.
I know that more than anything, you want to hear me say your name.
And I know you worry that you aren't good enough, and that you will fail me.
BUT I KNOW DIFFERENT MOMMY.....
I know that even on your worst days, you will always be enough for me, and I will always love you more than you know
I have felt your tears, falling on my face.
Someone else might think they are tears of sadness, because of what I can't do.
I KNOW DIFFERENT.
I know those tears pour from your heart out of gratitude for me, because of what I CAN do : I can love everyone in the purest form possible. Unconditionally. I can be judged, but will never judge in return.
I know different because I feel, in your hugs and kisses, that I'm perfect just the way I am.
I have seen you hang your head down in shame, when we go out on adventures.
Someone else might think you are ashamed of having a child like me.
I KNOW DIFFERENT.
I know you are ashamed of the grown-ups who ignore me, yet talk happily to all the other children. The grown-ups who won't look you in the eye, but stare at me, when they think you don't see. I know different because I've seen the many, many more times you have raised your head up high, with pride, because I'm yours. : )
I have heard you whispering desperate prayers at night. Someone else might think you are asking God to make me a typical kid.
I KNOW DIFFERENT.
I know you are thanking Him that I got to be here, with you, for another day- exactly how I am. I know different because I have heard you ask me never to leave you. And I have heard you cheer for me, every single day of my life- you tell me I don't need to be typical to be amazing, I just need to be here.
I know you have a big job, taking care of me.
I know your body hurts, because I'm getting so big.
I know that more than anything, you want to hear me say your name.
And I know you worry that you aren't good enough, and that you will fail me.
BUT I KNOW DIFFERENT MOMMY.....
I know that even on your worst days, you will always be enough for me, and I will always love you more than you know
Saturday, 8 October 2011
ok this update is for u lovely sandy and the rest of the kurby fam
well i am updating for you sandy as you dotn have facebook and there isnt any new updates on evas blog. So to all others who been thinking of Crys evas mummy shes out of hosp out after second treatment and is doing well she has her next test in two weeks keep the thoughts coming people
Friday, 7 October 2011
update on the sweet charger
the other day i asked for prayers for a sweet charge and fam i know through fb well jsut wanted to tell u all who dotn see fb everything went great and they r heading home i beleive positive thoughts and prayers can really work it doesnt matter what you do jsut do one or the other and it works other stuff im doing ok having fun looking at christmas in every shop lately LOL christmas has arived in alot of shops and its crazy
Saturday, 1 October 2011
asking for prayers for a special charger
Hello all its occtober and i have a very special request form one of our charge fams please pray for the very special charger in my fb pic. His name is mathew hisd mummy dena is asking for prayers and sutff on fb as he is going in for soem testing in cincianati. As we all know with these chargers or some sometiems these tests and procedures can be fatal. We know that a charger means the ability to fight pray for his ability to fight and for the fam send positive thoughts and let us hope the drs can do what they need to do to help him will update if i hear or see anything on fb thanks
Thursday, 29 September 2011
update on hearing and bloods
Well Last week i had some blood tests for my hearing mum had talked to one of her firends who knew an old dr of mine who swuggested all of these tests. I got the bloods last monday and got the results all negative for everything especialy what dad has YAY next is a possible mri. The gp is mroe help than the ent at the moment but he keeps going away. My hearing is stgill going up and down today it is down and i told another carer i thought she was the other one her voice sounded the same today. Other things all going well this sunday dads brother is coming down form Byron. Dont get to see him often am excited i am doing well other wise and cant beleive mtwo motns ago today i was cuddling my fave charge fams.
Thursday, 22 September 2011
WOW
My hearing has gone down yet again mum never got the meds. But she did talk to her lovely lawyer friend who now works in her office . and she said her gp is deaf blind and she ite have ideas so she rang her. This lady she knows is married to a dr who works at the childrens hosptial and he remembers me she got him on the phone and he suggested way mroe than what my ent has said. More different sorts of bloods not jsut for what dad has and he thinks i need an mri. What a lucky think kathy came to work with my mum LOL coz she has connections with an old dr. We could put her touse . Everything else has been good so much happening in charge land on facebook. It has been craz but i am all good now. I just cant beleive its three months till christmas. i also cant beleive jsut two months ago i was in america in fact two months ago today i was on my way id of been boarding the plane and getting ready to take off. Two months ago today id of been in a world of excitement. Two months ago today charge familys knew that in a week they would see me. Two months ago how fast its flown. I still remember those times and allways will. Meeting with my charge families was amazing. Seeing the places was amazing. I wish i could turn back time and do it all again. Si ce i cant do that I guess ill jsut have to hold the memories Love to all my friends and family big hugs to crystal and her fam asshe goes through the treatments and hugs to masons fam as he is in hosp and also LOVE YOU EVERYONE
Sunday, 11 September 2011
a hundred years and fifteen days WHAT A LIFE
That is how old my great great aunty phyll was when she died last night. She is and was grandmas aunty you see mums side of the fam is very compllicated i put it down to my aunty phyl having kids in her fourties LOL. Basicaly her sister was grandmas mum they had lots of siblings. Well grandmas mum had grandma and three others.well grandmas aunty phyl had mums cousin sue who is really grandmas cousin at liek fourty grandma is 85 and sue is 50 soemthing. Well anyway sue and my mum are close and i think of her as my aunty and her mum was just nin to me coz all sues kids and her grandkids called her nin. Nin was a great woman like grandma is a great strong woman lived at home till she was a few weeks befor a hundred. She has allways had the cheeky side that i have wich soem will call my charge cheeky side but i think could be my jennings family ansestroy cheek LOL. she was a true fighter and passed it to grandma me sue who has had three lots of cancers and survived them no make that FOUR LOTS OF CANCERS as of um last year. one of my cousins who has downs and many many others in my family i jsut love my fam and hope my super strong still driving around grandma makes it as long as my wonderful great great aunty did and i am sure she will and on that note while others remember what they were doing TEN years ago i was in school i sit here thinking well on the tenth aniversary of 9/11 my great great aunty died on the aniversary. send hugs to my wonderful aunty sue and her fam and of course all our wonder fam as i decide weather i want to go to cpp when the funerals on or go to it plus also keep evas mummy my wonderful charge mummy crys in ur thoughts as she gets her treatment from MROE GRRRRRRRRRR maybe nin could send her some of that fight down form heaven pls ninny of mine love u all
Friday, 2 September 2011
hearing update
Well saw ent he ordered the blood test and had no ideas why i would be having these probs but he did say it is a good idea to check specialy as ive had a number of dbts from central lines years ago.. He has given me presedone and hopefuly that will help if not who knows
Thursday, 1 September 2011
Getting fustrated
I am so fustrated at the moment. My earing went again last night and its sorta back today. I dont get this its like up and down. i really dont want to loose mhy hearing.. Dads dr wants me to be tested for what he has as its something that could effect every organ and any organ. I am scared that i have it i am sure i dotn they dont even know that its genetic but im worried. Also every time i come to casula wit cpp i over heat ad im sick of it. They wont fix the heating for me ive asked and they say its the building and they won fix it. I wish things could go right again I want to be back in orlando in hogwarts or with my charge fams NOW. Spring i here and it feels like summer right this econd. Not much else is happening here. just the usual.
Thursday, 25 August 2011
hearing is back
just wanted to let eveyrone know my hearin is back. It basicaly came back on tuesday hearig appt tomorrow and we will see what it shows
Wednesday, 24 August 2011
last day in the US bye bye lovely america
Well thids is the day we came home so basicaly we all were up at 4am and out the door. We checked out got into our taxi YAY only taxi that we had entire time that fitted two wheelchairs at the same tiem i felt at home actualy LOL. Well we got to the airport checked in walked towards our gate got screened in security for the millionth time allwasy check that formular and then found soem food. Then we went to our gate and waited for our plane. Our plane was on time YIPPEE i have heard stuff bout delta that wasnt so good but they were prety good this time. well on the plane i jsut slept and was lazy then we arrived in la. we had been told our luggage was in transfer and it was yay we got off the plane came outside and walked through asked about two dif people how to get to our transfer or at least to our terminal. We went down stairs and we asked where should we go go now we went back up and outside and walked around to terminal three and walked in. There was no one at vaus check in but there were some seats and stuff so we sat down. Amira wandered off to find lunch for everyomne then we ate and i was on fb after a while we checked in and went through security wich was ok. Then we walked to our gate and jsut sat down for a bit we sat in an area that wasnt our gate but was the transfer lounge for other flights to other flites i think. Then after a while we went to the gate and sat there. We waited a few more hours watched a plane leave then our plane came. We got on and i went right to sleep well after listening to the safety instructions though i know everything.. I slept basicaly all the way home and everyone else slept and watched movies i woke up a few tiems went to loo and played a game on the telle then slept. I woke up a bit befor the desent into sydney and just looked around. When we landed we waited for everyone to get off then we went through and came home. We came out the gate area and mum was there she was worried bout sev and amira and everyone getting a taxi and i said oh itll b a breeze compared to vagas and it was they got a taxi in minnutes. When i got home i ust relaxed and amazingly wasnt jetlagged. I know when i was on that night to kim my lovely charge mum she was surprised but not coz well i am a charger and chargers have different sleeping patterns. I had a great trip and really loved being with everyone and i want to go again
Tuesday, 23 August 2011
last day in harry potterland
Well we got up and got ready to head out to harry potter land once again. After a wait for the taxis we got there later than we had intended but at least we didnt have to go through the ticket booth. We headed straight for harrypotter and when we got there we decided the best place to start would be hogwarts because that would probably take a bit so off we went. I loved walking inot that castle it was very dark in there at first so hard to see but once i adjusted to the light i was able to see we went up in a lift and we could of gone on the ride but apparently it was very rough and it wouldnt of been very good but we looked around the parts we could. We heard portraits talking and everything was very cool. After that we went back down and into a shop that was very crowded i got a top and an owl. Then we went to olivanders and got a time to come back for the wand show we then wand into dervish and bangs was great in there the had a little stall outside where they had a few things i got another owl a quill and then we coz of our wheelcvhair pass we could go inside and we saw loads of great things. we walked through dervish and bangs and came out into the owl post area where there were wands for sale i got harrys wand and i also got an owl mug. We the went into olivanders was great in there the wand show was amazing and then we ended up in the owl place again. we also went to hone dukes and i proceded to buy the shop out and zonkos where i got a pigmy puff ithat i called it sev i thought of calling it eva after my sweet cvharge friend but then i thought they mite nto say her name right we have a very special way of pronouncing and the man asked me so i just said sev. we then decided wed seen everything that we could we left that area and had a bit more of a walk around then headed back to our hotel for an early dinner because we knew the next day wed have to get up at four am for the flight back to la then home stay tuned a day of lax and flying
Monday, 22 August 2011
HARRYPOTTER LAND
Well the next day we had intended to go to harrypotter land early but that didnt happen. After breakfast we had trouble AGAIN finding a taxi that would take us and we were off to islands of adventure. We had been told by crys and a vew others wed need a chairpass and we would or should be able to use the one for the two chairs so as we got our tickets we asked the lady for a pass she goes oh you wotn need one of those so we went through and this lovely man where u show the tickets said have you got a pass we said this lady said we wouldnt need it he said well its allways good to have one so he sent us to the info help area and we got one for the group. This was a great help. We first walked a little through seus landing such a prety colourful place there and then we walked round to harrypotter land. The crowds were huge we walked in and we saw the lovely sign for hogsmede it was like a dream come true. We saw the hogwarts express went for a walk looked at the long queses tasted some butter beer delish but not good for the reflux and looked at the front of hogwarts. Then we decided we were better coming back the next day so we left the area and went to jurassic park. I am not the worlds biggest dinosour fan but it was interesting to see all the stuff they had. After we had a look around there we decided to maybe venture back to our hotel with a walk by some rides we also had a look at this lovely water area just outside jurastic park so lovely but we could see clouds coming. We walked through seus landing and amira and hamish went on a ride there. Then we got the RAIN it started pooring and the thunder and lightning started. We ran to the arch way where most people come in and out well we were there and we jsut stood there and watched the rain wich lasted about fourty minutes. After noticing everyone was leaving and the rain had cleared we decided to venture back to harrypotter for another look well was still crowded but we did mannage to get into the three broomsticks for some lunch.. It was nice in the three broomsticks. After that we really did go bac and just didnt do much in the hotel then had dinner ready for an EARLIER start to hp land
Sunday, 21 August 2011
bye bye charge fam till next time
Well sunday morning was the last day of the confrence such a lovely time so many great families to miss but i know we will keep in touch. Well as usual we went down for breakfast and sat near bel and a few others then i wandered off to see people and say bye to a few. That morning we listened to a lovewly speach form a lovely lady from perkins perkins is a great school all the people i met for there are true gems. I sat with pam for a bit she is a very lovely woman and i jsut so love her. After was the adult panel i think everyone loved me once they understood me tho they did need pam to help the interpreters i guess they picked her coz she has known me form the list since i was basicaly 18 so she knows all the aussie talk LOL. after that there was a lovely closing speach by the wonderful david brown you could of heard a pin drop it was so quiet. Everyone was in awe of what he said. i mannaged to say bye to a few people and i also had a little talk with annette our aus foundation pres it was wonderful to have her there. it was wonderful that she got to hear me speak again two years in a row. After that i said good bye to a few more people and we checked out to go meet sevs fam at the remada inn wich was wierd when we got there it was like we didnt have a hotel there was construction everywhere. We were fortunatly moved to another hotel wich was ok and we basicaly relaxed for the rest of the afternoon. Ready for harrypotter land. I wish i could of said good bye again to crystal and eva and the kurbys and many otheres there were so many people at conf. And i plan to be there in two years see you in arizona charge fams love you all
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